Could a schwannoma on a scan be wrongly diagnosed as cancer? I have Schwannomatosis NF3 and have two schwannomas on my prostate gland.

[Adlon57]

I have been diagnosed as having Prostate Cancer, but in no pain, but a bit irregular, probably due to the schwannomas, which started at the same time in 2019. The schwannomas would show as benign growths on the outside of nerve canals[prostate?] underneath the skin. I was diagnosed in June 2022 via a biopsy for Prostate Cancer.

[piglette]

My brother was diagnosed with prostate cancer with a PSA screening. He had no pain and would not have known anything was wrong if he had not been screened. He decided to have his prostate removed as his wife had died of cancer at 52 years old and he just wanted to get rid of any possibility. I believe in a lot of cases even though there may be a positive check one might be dead anyway before it develops into anything, it is really does one want to take the risk or not.

[Adlon57 in reply to piglette]

Sorry piglette my question was badly put! I had a biopsy done in June 2022, because my GP had seen the schwannoma in 2020 and knew I was 'irregular' in Feb. 2020 [about the size of a baked bean, it was subsequently followed by another one, about 5cm away, they turned gelatinous after circa 2 months, which they are now], I being vulnerably disabled, went into isolation at March 2020, in 2021 I proceeded to have a dramatic reaction to AZ vaccine from Feb. 2021, WHEW!

My brother had Prostate Cancer in 2013, had the operation, but I believe still a bit delicate about it? My sister had Thyroid Cancer in 2007 and made a full recovery!

I am worried about those schwannomas being mistaken as cancerous growths, which they are not, having Schwannomatosis NF3 since 1970, such a rare condition, the only person in Ireland with the condition, I have had three operations to remove these schwannomas/benign growths since 1970, just never in such a awkward place, [actually 2nd operation size of a walnut on my spinal cord] they happen in the trunk of the body, arms, legs and hands, under the skin! I almost feel like sticking my right forearm, under the scan, for comparison, there is a gelatinous one originally about the size of a double grain of rice , been there about 7 years. Hard at first, but after circa age 60 they just appear under the skin, reduced in size, but gelatinous?

[Adlon57 in reply to piglette]

Yes piglette there is so much unknown about cancer, you really do have to be patient with the medical staff, they are caring in unknown areas, so many new factors to worry about but so many new discoveries are being made, is my cancer going to develop into something else, or 'fade' away, do I stop here or go on with the treatment? At this particular time as you say "does one want to take the risk or not"

[piglette in reply to Adlon57]

There are real leaps forward with cancer it seems.

[Adlon57 in reply to piglette]

Not 🥴like Epilepsy, had that for over 50 years, pretty similar, to what it was then to what it is now, although that is concerned with the brain🧠, the most 'complicated' centre of the body!

[piglette in reply to Adlon57]

I suppose so many more people get cancer, they say one in two, I don’t know how true that figure us, but I am sure it would encourage research if you are talking about half the population.

[Adlon57 in reply to piglette]

No I was saying research in Epilepsy cure's has basically not changed in 50 years, but this is due to the complexity of the human brain, cure for cancer is definitely more hopeful!