Thyroid e petition re different treatment options

[Pooh10]

Hello,

I hope you don't mind me posting this on your forum (I can delete if necessary). I'm trying to promote a UK e petition created by Thyroid UK below. Please sign and share on social media or other if appropriate. Many thanks

The reason why I have posted on your forum is that thyroid problems can so often be an associated factor in so many conditions e.g. fibromyalgia, depression, anxiety, food intolerance, absorption issues such low vitamin B12, vitamin D, iron and more, chronic fatigue syndrome, fertility problems, weight problems, sleep issues, other auto immune disorders and many more.

Please help and if you agree sign and share (Facebook, Twitter, etc) the e petition below.

Thyroid sufferers really need your help.

Anyone can succumb to Thyroid disease although it mainly affects women. The results can be mild to very severe. It has the ability completely to destroy a person's and their family's lives, e.g. unable to work, infertility problems, relationship problems and severe mental health problems. I could go on.

I myself have lost nearly 15 years to this debilitating disease. Despite all efforts, I've lived in constant pain, had problems maintaining a good weight, experienced extreme weakness, cognitive problems, severe dizziness/vertigo to name just a few symptoms. This made me largely house bound, unable to participate in much of daily life and reliant on others for help. Throughout this period, the NHS only offered me thyroxine (T4 the inactive form of thyroid hormone).

Thankfully, having done my own research, I'm now on the road to recovery having found other treatment options namely, Liothyronine/Triodothyronine (T3 the active form of thyroid hormone) and Desiccated Thyroid (NDT) which contains T1, T2, T3, T4 and calcitonin (the same as a human thyroid).

Many people do well on the conventional treatment of T4 only. However thousands of thyroid patients are suffering unnecessarily. The economic cost to the UK in terms of general and mental health care (including inpatient care), welfare benefits and employment costs of maintaining this narrow approach must be significant and I have little doubt would well exceed any additional cost which a broader choice of NHS medication options would require. So in real terms, although hard to quantify, there would probably be net saving to the Exchequer and NHS.

Lets see if we can make a difference for thyroid sufferers in the UK and potentially globally.

All we need to be heard is 10,000 signatures. Why not help us reach our goal of 100,000 signatures.

Many thanks for you help.

Best wishes

Melanie

epetitions.direct.gov.uk/pe...

[Shell567]

Hi Pooh10, hope you don't mind but I've posted a new link and some information from the site.

THYROID UK:

'On 23rd April 2014, Thyroid UK re-submitted their Government e-petition asking for research into T3 and/or natural desiccated thyroid treatment to be funded.

There are thousands of people with hypothyroidism struggling because they cannot tolerate T4 only treatment for some reason, and their doctors refuse to prescribe anything else because they say there is no evidence to support the use of T3 or Desiccated Thyroid.

However, many patients tell us that they recover their health when they change their thyroid medication to include the use of T3 and / or Desiccated Thyroid. Despite this, the majority of doctors still will not prescribe these medications without official research to back up this 'anecdotal' evidence.'

Petition closing date: 23rd April 2015.

Read more @ thyroiduk.org.uk/tuk/campai...

[Pooh10 in reply to Shell567]

Hi Shell567 thanks for adding the addition info.

[Shell567]

No problem, Pooh10. A lack of research in some areas can be a problem.

[T4fedup]

Thank you so much for this interesting article and will also sign this petition. I have also asked my doctor about the T3 treatment but she said its only for people who are overactive. Everything you say is how I feel. I am being treated for Bi-polar which includes some of the other symptoms you mention.

Where did you get your treatment as I am willing to try anything to make myself and my daughter (who also has this horrible disease) better.

[Pooh10 in reply to T4fedup]

Just to let you know I've just sent you a private message. My advice would be to read up and don't give up. It has taken me nearly 2 yrs to get to this point but I was ill for 15 yrs prior to that.

[Emily_Jesper Partner Sense About Science in reply to T4fedup]

Hi T4fedup, The British Thyroid Foundation offers support and information, including a helpline: btf-thyroid.org/index.php/s...