Does anyone know what dysautonomia is - Healthy Eating

Healthy Eating

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Does anyone know what dysautonomia is

Swimmer21 profile image
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Last year around May 18th I was diagnosed with a condition called dysautonomia which affects my autonomic nervous system, mostly I faint a lot and have high blood pressure, I can provide more information if needed or asked about.

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Swimmer21 profile image
Swimmer21
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4 Replies

Hi there, I for one have never heard of dysautonomia and little seems to be understood about treating it except exercise is important and stating the obvious diet will be imperative as the more natural nutrients we ingest the better and finding what works for the sufferer.

If you want to post information about dysautonomia I'll happily create a Topic section to keep all relevant posts together.

To me the most important thing to remember is you are not alone as many of us have conditions and I for one have an autoimmune disorder and am a coeliac, the secret is to find what works for us.

So good luck with this and I share your love of baking as do many members so as I said before you're in good company on here. 😊

Zest profile image
Zest

Hi Swimmer21

I haven't heard of dysautonomia before, but I'm glad that you have some information about it - and I hope that you are getting some good support from your medical practitioners and relevant health providers. I had a look online and saw the webpage of Dysautonomia International, who appear to be a charity who have links to further information:

dysautonomiainternational.o...

I suspect you already know plenty of information, but it was interesting to read that.

Zest :-)

Carokai profile image
Carokai

Hi Swimmer21

Did you manage to progress with your research into what Dysautonomia is?

I have also been recently diagnosed but 4 months later am still awaiting tests.

In the meantime I have had a hospital admission with serious gut and heart issues following an attack. Neither the doctors on A&E or on the assessment unit I ended up in, seem to know what the condition entails and I was very concerned at their inability to understand or treat the attack.

I realise now that I need to do some research of my own to help me get control of my rapidly deteriorating health.

Kai-- profile image
Kai--

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Warm hello, Swimmer21 ( 🏊‍♀️ 2️⃣1️⃣ ). . . . 👋 😌

Just looked up dysautonomia ( my.clevelandclinic.org/heal... ), but couldn’t find much of anything amongst the ‘plant-based’ folks I follow. 🤦‍♂️ 🤷‍♀️

Did find this 1 reference to Stephanie Patterson who also has dysautonomia ( oldwayspt.org/resources/veg... , have to scroll down page to find her name). Stephanie‘s inspirational words read:

"It’s #vegtoberfest I’m joining and showing off my most recent farmers market haul to let everyone know why I’ve taken the pledge to eat more fruits and vegetables. I’m chronically ill with two types of muscular dystrophy that cause dysautonomia, and a host of other syndromes; and a main symptom is chronic fatigue. We get our energy from food and if Iwant to keep moving, I need to be vigilant about what I eat, there’s overwhelming evidence that going plant based is the healthiest choice. I’m also very aware that meat consumption is terrible for our environment. I do eat all foods, but try very hard to be a locavore and believe in filling my plate with vegetables and whole grains and keeping meat and treats on the side. I don’t have the life I expected, but I fight everyday against the hand I was dealt, maintaining a positive attitude, while accepting that bad days happen. I absolutely love cooking, baking, and canning, and am glad I’m able to fulfill that passion while keeping myself as stable as possible. Will you join me and pledge to eat more fruits and vegetables too?” — Stephanie Patterson

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Aside: Don’t know if Bill Gasiamis’ work/ podcast about brain-related injuries 🧠 🤕 ( recoveryafterstroke.com/epi... ) might be of interest to you? May be some interesting conversations? 🤔

Very best wishes, 🏊‍♀️ 2️⃣1️⃣ . . . . . 😌 🙏 🍀 🌺 🌞

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