RIGHT HOMONYMOUS HEMIANOPIA post TBI

[Evelyne]

following his bike accident, my 30 years old son has sustained homonymous hemianopia , as a consequence of his brain injury. Anyone here with same? would like to know how you are coping?

[brighton88]

sorry not heard of that

[Evelyne in reply to brighton88]

it is the loss of peripheral vision,

[cat3]

Nor me...sorry.....hope you get replies soon. x

[marmite11]

Hello,

I have found this site and wondered if this might help at all:

hemianopsia.net/

It is American but you may be able to find out more from them?

Hope this helps.

[Evelyne in reply to marmite11]

The video link is great , will pass on to my son, thanks again

[Evelyne]

thank you for this, it is more about knowing people who are living with it. I did so much research in the last 4 years, and i am still looking for new things that may have been developed.

[marmite11]

I'm glad it is useful. I hope your son finds it helpful too. Is he getting much support at the moment?

Take care

[Hidden]

I worked with a bloke who had that.

[Smilerdi]

I had a brain haemorrhage, caused by an AVM in MAy last year and was left with RIGHT HOMONYMOUS HEMIANOPIA too. Let me know what you specifically would like to know that would be helpful to you?

[Evelyne in reply to Smilerdi]

thanks for your reply. Well, my son has lost 2 jobs because of it as he has found it difficult to write reports as a research engineer. He gets quite down about it and not being able to drive has made it worse, as he used to be sports champion and highly academic. How are you coping with it?

[Smilerdi in reply to Evelyne]

I'm sorry to hear about the job losses. That's sad to hear, as it also negatively affects his confidence I would imagine.?

I'm perhaps at an earlier stage of recovery, as I've only recently started my phased return to work, five weeks so far, at three days a week I'm coping well. I have already had to undergo an interview for a job, as I returned to work at the point of a restructure, and amazingly I was successful in securing my position. At work im not finding my right side blindness too difficult, as I just have to rotate my head further right to see a wider field view.

Not being able to drive is not easy for me either, as im a very Independant person, used to spontaneously doing things, which is now more difficult of course. Though I constantly remind myself that most people die or are left with severe disabilities after what I've had, so I'm so very grateful for life. I also find it encouraging that God clearly hasn't finished with me yet, and there is more for me to do here on earth! So bring it on I say!

I am also very sporty and somewhat academic too, I walk and swm a lot , and am just starting back at the gymn, all of which really helps my mood I've found.

Please feel free to keep in touch, and If I can be of any more help, please let me know?

[Evelyne in reply to Smilerdi]

thank you for your inspiring email. Keep being positive!! do you get fatigued too? my son has to sleep at some point during the day, do you have to sleep too during the day? reading accentuated the fatigue.

[Smilerdi in reply to Evelyne]

Yes, I too have mental fatigue which worsens as the day goes on, particularly when doing lots of reading.

The brain injury medics that I see tell me I must rest mid day and take breaks throughout the day to minimise the mental fatigue. I can rarely sleep in the day nowadays, but i always go and lie down around mid afternoon, i shut my eyes and shut my brain down which helps a lot.Lots of little breaks from work or spells of concentration help too, so I just walk round the block a few times a day at work. Hope that helps?

I would be interested in knowing how long ago the injury was? And whether your son is continuing to improve?