Well my sons anxiety is getting worse, he's saying his bed is his safe place, so he doesn't get washed,get up, uses urine bottles and bedpan, occasionally misses and is OK lying in it, etc etc He's in rehab and they are doing their best, but he is getting assessed soon and I know he.ll go to a nursing home where he won't get the care as well as where he is.
His main anxiety is falling on wheelchair transfer, he hasn't fell, he's stumbled a few times
Could hypnotherapy help with that? Just willing to try anything please
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Skallagrigg
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Hi, I'm a big fan of alternative options as a supplement to specialist treatment. I've just read through your posting history on your son's injuries which are serious. It sounds as if your son may require permanent part-time help from a rehabilitation team for motivation and redeveloping as much brain function as possible. Hypnotism has no track record with BI and may cause further problems.
A friend of mine had a serious TBI 5 years ago and spent a year in hospital rehab in a place near Stoke. He was rehoused nearby where family and friends could check in and help but he also had care and rehab from specialist staff on a permanent part-time basis. He had to be readmitted to the rehab ward on many occasions for a few weeks or couple of months because he lost motivation and spiraled into a down cycle. Today he lives on his own in a different part of the country in a relatively quiet small town by the sea. He still however gets part-time one to one care assistance where someone visits him and takes him out further afield.
I'm thinking you could ask for some kind of a care package to help your son with some of his needs and potentially bring a wider perspective to his life. This may give motivation by expanding his views in everyday terms and may provide hopes for the future.
You always have to remember though that different health authorities and council services (that provide the care packages) around the country and devolved nations have different rules and priorities.
If you do ask for more help and it is not provided you may want to contact your community's solicitor, where due to your son's condition should be free. The community's solicitor can make the case on your behalf to the council that provides the care package. By law they have to provide care assistance if it is deemed medically appropriate. As you have read in many people's posts, they regularly get abandoned in the community where their relatives have to care for them. This is not fair on the person with the BI or the family and friends who struggle to cope with the fall-out and get stressed and ill themselves. Part-time care may help you in this situation.
Just throwing out some ideas for you, hope you don't mind.
Hey throw the ideas lol I.m running out, he is on 2 to 1 care now as he's got so erm bad? Scared? Anxious? I wasn't sure about hypnotherapy as part of his brain is gone, but hey,
All I think of when they say nursing home is no rehab at all, yuk, but he's a stubborn sod and his favourite word is no constantly, used to be able to use food as an incentive but he refuses food and is down to 7stone, so of course moving to wheelchair he is weaker I showered him last week and no muscle at all,
I.m looking for that magic wand in whatever shape it comes in, cheers
No I don't, it.ll be 2 years next month and I think after 3 months people stopped asking, the only people who have ever visited him has been my mum(86and wheelchair) my other son occasionally and myself, I don't drive yet(test booked ooer) so the rehab pay for a taxi weekly to do the 100 mile round trip to see him,which is amazing
Hypnotherapy can be useful for relaxation and reducing anxiety in some individuals but in this situation it's probably going to depend on the severity of his injuries and cognitive impairments. His injuries sound quite serious so not sure hypnosis is going to benefit a lot.
Personally, hypnotherapy worked wonders for me. I know other people who have said it hasn’t, but I think it’s worth finding someone who is highly recommended.
I have used a lady called Cathy (The Green Room Therapy) she is based in Norfolk. Whilst I saw her in person I’m fairly sure she can do Skype sessions for those who cannot make it in person.
It helped with my self esteem/overthinking and worrying. And it helped me to realise where it all stemmed from - I would have never guessed without her work.
Do you have access to a neuro psychiatrist? I ask because some also can do things like hypnotherapy, treatments for ptsd, and also sometimes suggest morning light therapy, vit d3, and/ or other thinks to help reset his mood and circadian rhythms.
From the sounds of his story my guess he would benefit from a multi pronged approached.
A neuropsychiatrist can also review his medications.
Talking to a bi literate pharmacist can also help with the medication review.
Neuropsychs get trained in psychiatry first snd then do a specialty in brain injury. They generally gave a good handle on what the main cause may be, plus know the medication and supplement piece.
The one I saw was really terrific.
So many medical people aren't really that bi literate ...they deal with the acute phase and not the rest of day to day life.
And I will say, get help. You need it. He needs it. As much as you care you need professional help - start fighting for it now - before you collapse. Get your MP involved if you have to - he needs both more care and rehab
He sees the neuropsychiatric person once a month, this rehab is so good they really just want him better, they will try anything, it's him, it's just no no no no
I just send you a big bear hug! I am so glad you share with us. During my months in a nursing home, I may not have eaten as well as at home, BUT the nurses and techs gave me abilities I never thought possible. Love!
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