Update on PEG feed problem

[Silkwood20]

Hi everyone!Happy to report my husband has had his PEG feed repaired this afternoon. Bless him, he was 8 days without food, although IV fluids were given, he actually seems none the worse for that. After an anxious weekend, I was told Monday that he would be on the list for Endoscopy. They'd had a meeting and had decided it was in his Best Interests to do the repair. So I was rather relieved.

We are to be given some extra training too, so that, if, in the future , the inner tube becomes dislodged, we can spot it sooner, rather than later, so that is good..learning all the time!I

Thank you for all the words of encouragement, this forum is such a help and support!

[Nanapal]

So pleased they managed to resolve the problem with your husbands PEG. Life is such a stressful rollercoaster so always good to hear positive outcomes.

Totally agree this forum is such a support in both the good and bad times we experience. I actually told a lady yesterday in my son’s care home about it. Her son has had a cardiac arrest & hypoxia brain injury leaving him needing a PEG, trachy & spasticity problems. A lot of similarities with my son so it was nice to speak with her.

Take care. Nanapal. x

[Leaf100]

That's great news , Silkwood. I hope you manage to catch up on your sleep a bit now.

One day at a time on the Rollercoaster, remember to eat well and catch up on sleep when you can.

Take care,

Leaf

[Hay2210]

oh I’m so pleased for you I’m glad everything is sorted for you and especially for your husband perhaps you can let me know what they said about a peg dislodge in case it happens with my husband what to look out for thanks 😊

[Silkwood20 in reply to Hay2210]

Hi Hay!Thankyou... His PEG type is jejunal so it has an inner extension tube, as I understand that's what came detached from the main part. He had about 3 chest infections in a row, antibiotics seeming to partially help each time, but then not... What was coming from his Trach was a different colour (at one stage like coffee grounds) then eventually (after about 3 weeks)it became obvious because it resembled the feed. His stomach got quite swollen and hard. A scan showed the displaced tube. Then they tested by putting a syringe full of feed into the jejunal port, followed immediately by aspiration of the gastro port with another syringe, it was obviously the same liquid coming out. (The feed should not be in stomach but in bowel if jejunal is correctly sited) Hope this makes sense...

Feel free to ask any more questions. It's important we learn from each other and can help our loved ones.. My poor husband can't speak, or he possibly could have told us something felt wrong before.

[Hay2210]

thank you my husband can’t speak either I think that is what’s so hard because like you said they can’t tell you , he also gets a lot of chest infections as well .

[Silkwood20 in reply to Hay2210]

Another thing we tried to lessen the chest infections was an air purifier, not sure if it helped, but he always got hay fever, so removing the pollen seemed worth a go...

[cat3]

Phew Silkwood, you must be massively relieved. And the plan to identify any PEG issues sooner in future is certainly what's needed !

It's so good knowing your man will be more comfortable now and getting sustenance at last. Thanks for the update m'love ; great news... Cat x