Baclofen pump update

[Nanapal]

Hi all, happy to be able to share some very positive news. Son had his long awaited Baclofen pump surgery two weeks and has had very favourable reactions. The very severe spasticity in his legs has shown very visible improvements. He was started on a low dosage and we have been back to the hospital this afternoon for a follow up review. Consultant & pain clinic nurses were very pleased with how much more relaxed his legs are. They have increased the dosage so hopefully we can continue to see further improvements in the coming weeks.

On a different note, it has been lovely meeting up with D & Sean in Hawthorn’s. Both of our sons lives have been devastatingly changed by brain injury so I think we have an insight of each others pain, sadness, tears, anger, battles and more. An understanding which hopefully means we can be a support to each other whenever it is needed.

Best wishes Nanapal. x

[Alibongo60]

Hi Nanapal, that’s brilliant news on the baclofen pump and hope for the future to continue improving, we all need something to look forward to. I am sure now D and Sean are there, you will support each other, your lives have ran parallel for so long, it’s only right that you are together, you have all been through so much, I admire you and D for your devotion to your boys you have never given up on them, it is thanks to you two that they have come so far, love to you all xx Alice xx

[skydivesurvivor]

good!! Excellent news on y sons progress too!! Hope it goes well,

[Annabella1976]

my legs have spasticity my left. Side is the worst and it’s in my left leg and left arm I’m tired and depressed with with it and I have anxiety more so when standing and the spasticity get worse I got a stroke when I was 35 now I’m 46 also my left wrist is paining me I’m so tired of it all I’m happy for things to work out for you and your sons

[cat3]

Really good news Nan. Such a clever device for delivering the precise amount of medication at regular intervals ; long may the improvements continue for your son.

And it does my heart good knowing you and D are now able to support one another in person ! 😑 Love Cat x

[Leaf100]

That's terrific news, Nanapal! In a world where things can so often go sidewards, it's so uplifting to catch such an important break.

And also wonderful for the 4 of you to have the support of each other at the same place.

Leaf

[Nanapal in reply to Leaf100]

Thank you all for your replies & best wishes. Son has had many setbacks so this improvement in his health & wellbeing is lovely to see. We actually got outside in garden area yesterday in his comfy chair to enjoy the sunshine!

Love Nanapal. x

[Dogsabighelp]

love you "Nana!"see,I told you about the pump and what my freind said.this will make such a difference for him.for what its worth(you can ask him)sean always says more than an ache in leg,foot,hand etc.There is some confusion around an appointment regarding such for sean,i will wait and seexx

[New_beginning]

Brilliant news x