Life

[Allmike62]

Hi I had a sub arachnoid brain haemorrhage on29th March 2016 I have struggled for a long time I had three Aneurysms at a junction and was lucky to have it coiled. At the time the surgeon said I was a dead man walking , after five years I need to ask how long have I got as I was told they would need to be re done ?????is this for life and how long will I live , my wife says I am not the man she married and I worry for the future. I have tried so hard to keep control of the future I have but for how long this is my first post I have read and watched for many years but bean scared to involve or ask for support.

[Alibongo60]

Hi Allmike, my story is similar to yours, I had aneurysm found in 2011, it was on the basilar tip, which is underneath the brain, near brain stem and area that controls breathing and swallowing. I was told if it ruptures it would be catastrophic. I had stents and coils fitted in 2012, and everything well for few years,until 2016 found aneurysm had grown while waiting for further coils it ruptured, resulting in subarachnoid haemorrhage, on a cold January night lay on the floor I thought that was it. I woke up the following day, to have further coils fitted, and slowly recovered, with little disability, poor short term memory, unsteady when mobilising especially when tired, but lucky to be alive. Was relatively well until 2018, when started having mini strokes to find it had grown again and was pressing on brain stem, this was more debilitating headaches worse, very unsteady, had to give up work, consultant willing to try more coils, but thought coming to stage where safer to leave alone. He had one man still alive after five years in which time new procedures may help. Collapsed night before surgery to find blood clot blocking aneurysm,told possibly wouldn’t stop there and keep eye on it, had scan in November to reveal aneurysm has shrunk and no blood entry. They say it’s unpredictable, but wanted you to see they don’t always get it right and there is always hope, even with the ticking time bombs we share,stay in touch apart from here haven’t found support anywhere else. Stay safe love Alice xx