BED MAKING! 🥳🥳: Oh my goodness, I had to post on... - Headway

Headway

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BED MAKING! 🥳🥳

ored13
ored13

Oh my goodness, I had to post on here because few people would understand. But today my husband made his own bed!!!😱😱😱. He didn't seem to think it was a thing, but on a random Skype this morning the healthcare assistant or nurse had said "tell her about the bed!".

Not being about to see progress is so so hard!!!! But this was someone who according to certain doctors would have no quality of life, not be able to move or communicate and would be best let go😡.

Shows how quick and cold certain medical professionals can be... They didn't even want to give him a chance. Well... They can stick that NONSENSE assumption (won't gratify calling it a prognosis) up their....... Noses!😤

It's been an extremely trying week but this is such a weird victory. Also that I can see that he has been on Amazon music makes me happy. Sometimes these random things keep us going. 😆❤️

23 Replies

That's great! It's true that these things mean a lot to those who understand these struggles. Thank you for sharing this. 🙂🌸

ored13
ored13 in reply to Marnie22

We all need a bit of a chivvy or something to show a bit of hope. I read loads of this sort of a posting a few months back and they honestly helped immensely.❤️

Marnie22
Marnie22 in reply to ored13

Yes, it's a good thing to share even little boys of progress. 😊🌸

Im smiling reading this post. Brilliant news x

ored13
ored13 in reply to New_beginning

Thanks. And how are you all keeping at your end this week?

New_beginning
New_beginning in reply to ored13

Its been another week that would make a good sketch for one creative writer. However, reflecting whilst typing this, im shaking my head, sigh of relief with nervous giggle and thinking well that was the most expensive week EVER. Basically cleared unexpected finance into thousands just under four grand my husband has made since October. Discovered Monday evening took until today to sort out. So the bending guttering on house and sorting fascias i was hoping to get done this spring/summer, on backburner for a long time 😩. New indepth area im learning on now.

ored13
ored13 in reply to New_beginning

Ouchie!!!! The financial hit is something that is just starting to rear it's ugly head. I'm self employed. I don't think I'll be able to work again at even half capacity. Trying to get by on one salary is hard enough, nevermind the additional bits and bobs. You are coping so very well with all that's fine on over that past year. Keeping a cool head, running the family. It's amazing the things we're capable of when fate turns...interesting.

New_beginning
New_beginning in reply to ored13

Yes its difficult being only sole provider for family this past year. It is really difficult working, caring full time, juggling kids paying for unexpected finances. But yes it is somewhat complete madness with the demands on ones shoulders. My mind dont stop whirling with planning, tackling all responsiblilities and how to approach. But it is what it is, and we are loyal wives with missions and obstacles that we"re eager to knock down every wall that stands in our way to support rehabilitation.

Its hard work, but despite the ugly and the bad scenarios, that core mission on rehabilitation on staying focussed and positive on all hopes is a major drive.

But after this week, im pulling in the reigns a tad so not in this situation again added stress totally unwanted and shouldnt have happened x

ored13
ored13 in reply to New_beginning

I too am looking at things that in hindsight shouldn't have happened. I wish I had not taken out a business loan to ride out the lockdown storm last year. The thought of how much work I was planning to do to cover it

...and the fact that I will no longer be able to do the work to cover that and all the other bills pouring in....makes me all itchy and uncomfortable 😳. But some of that is future me's problem. We can't take everything on at the same time. We will definitely burst.

New_beginning
New_beginning in reply to ored13

Some how it will work out it always does, be hard going mind, I had to sort out loan to pay this shocking week off. Dont think about giving up work, it be too hard to get back in the loop.

I initially thought id have to give up work altogether the first 6mths Husband home, thinking id have to sell house especially with 2yr old, which we never paid for childcare as balanced work prior. Some how, until she goes school its the way it is, september 2022.

It just be a rough couple of years, with some hefty juggling. Lol we wont know what to do with ourselves in few years with everything balancing out, x

ored13
ored13 in reply to New_beginning

Yes. About 2 weeks ago I was going to deregister my self employment and can or all a day. But then remembered my husband reminding me how much of a pain in the neck it was to get here in the 1st place...so why give it up because of uncertainty. This was due to the whole lockdown thing initially. I'll keep my licence and get rid of my car. I can always get a different one. I'll have to keep my training up etc. But one day I will probably realise that he doesn't need me as much as he did and neither do the kids. And then I'll be lost. Must keep my head in the game. But will put it on pause for now. Flip. Can you remember yourself a year ago nearly. Life seems to love these currve balls. Would you have even thought you would have kept going and juggling and managing through all this? Incredible! But you have and are doing it quite successfully.💪

New_beginning
New_beginning in reply to ored13

This time last year we were planning to go to the farm feed some lambs for my annual leave just long weekend. Planning on last bits and bobs doing house, i was ready to look at other job positions. Well come 16th March our world turned upside down, crazy year but somehow were both working and sussing out how TBI. We do feel extremely lucky.

Yes i would share all thoughts with husband nearer discharge, It will ensure he still is involved and glad youve reflected on work its hard enough with the employment status of country, keep your foot in, even if juggling hours to stay in, plus in a weird way, working is a break from caring role especially holding the fork for 2-3years,

Its sad dealing with life changing injuries and wives like us having to deal with financial strain on top, it shouldnt be that way, but theres no real support on this situation x

Oh my goodness, that’s amazing!!! I can’t tell you how much this fills my heart with hope❤️ My mum is currently in the ‘hopeless’ stage as far as the consultants are concerned and it’s soul destroying!

So happy for you and I really can imagine what this means, wishing you and him all the luck in the world x

Thought of you Hope when reading this ! xx

Aaah did you, thankyou x

Honestly, there is hope. After that initial shock when they thought we should let him go, honestly tried to bully, strong arm and intimidate us...I lost so much faith in the healthcare system, which of course is not fair on the system. But we just couldn't believe it. Today he sat in his case conference with the multidiciplinary team with his slippers and spotty socks on and crossed his legs. I nearly burst into tears because it was such a "him" posture. Also nice to see his whole body rather than just his face and a bit of torso. I would not have believed this in December, but here we are. Intelect in tact. Speech well and truly affected, but actively being worked on. The same with his mobility. I couldn't believe it when they mentioned him making a cup of coffee this morning and that he can dress himself...shoe laces appear to be tricky because of left sided weakness. But honestly I think I have breathed today for the first time since December. Baby steps.

Don't let them mess with your head. Time, it seems is a big healer...they should know that themselves. Persevere❤️❤️❤️❤️

I have just shed a few tears at your response, it’s honestly so wonderful to read ❤️ How lovely that you get to see a glimpse of how he used to be and he is slowly but surely coming back to you!!

I genuinely feel like we are being bullied at the moment also, I’m in a bit of shock and completely at a loss. The consultant burst in on my dad last night and explained that if she were to develop pneumonia they wouldn’t give her antibiotics as she was ‘too far gone’. Dad called me totally floored last night (bearing in mind he is already traumatised after doing cpr on my mum the night she went into cardiac arrest) worrying they are going to remove care. I have now told them they are not to speak to my dad but to speak to me, so he called me today and said ‘your mum is going to die and we don’t want to prolong her suffering and want to give her end of life care’. I stood my ground and said absolutely no way but I have a meeting tomorrow where they will no doubt TRY and bully me but I won’t stand for it. She has been transferred onto a general ward as a critical patient receiving 1-6 care, being checked on every two hours...absolutely appalling. I have emailed pals and I am going to speak to my local mp on Monday as it’s unacceptable. How can she be a critical care patient receiving non critical care?

Xxx

That's brilliant news ored - good to hear 😊👍

ored13
ored13 in reply to Painting-girl

Thanks. It's been a bit of a long road with more to come I'm sure.

That's a really big step Ored, and accessing music on Amazon too. Really happy for you both. Onwards & Upwards ! x

ored13
ored13 in reply to cat3

Good grief yes. If I think back to December...the body is a truly amazing thing.

It is really heartwarming to read this. Thank you for sharing - it gives hope and encouragement.

ored13
ored13 in reply to Butterfly28

We all need a bit of that on the hard days. Just a little bit of hope...

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