why are things so much worse when i go to bed?

[deborah27]

the 'buzzing' is worse, the tremors are worse, the vibration sensations are worse, the pain is worse, the burning and 'crawling' skin sensations are worse. the head pinging and feelings of jumping are worse, the temperature controls are worse, too hot too cold etc... everything is so much worse in bed, when i need sleep. what on earth is that all about!!

[Celtic27]

Sorry to see your having such problems have you been to your doctor to see if theres anything they can do to help ! What about trying a couple of co codamol 1/2 hour before going to bed ! If you dont mind do you have depression or anxiety which might have got something to do with you symptoms ! Please take care and see your doctor if just to put your mind to rest . david

[Hidden]

Deb it’s because our brains even when we think we’re calm, work like chugging away all day and so then when we lie down and start to drift off our synapses slowly go into standby mode and that does sometimes mean that ‘issues’ caused by a brain injury are suddenly apparent because your brain is not really doing anything else so there’s more than enough room for the sh*t to exist and annoy the living hell out of you :/

[IanAG]

Hi Deborah, I’m sorry to hear that you’re having all these symptoms. I can’t offer any answers other than to say I empathise with you because I have similar issues. I’ve had to return to bed for last three days because of just feeling so generally unwell. Have you spoken to your doctor or neurologist about this to see if they can give you any help? I know though that with CO poisoning they seem to be quite limited in what they can do. I’ll keep praying for you. Ian xx

[Kirk5w7]

Hi Deborah,

Ive noticed how my brain works on problems, just basically continues to work overnight. You know we are often told to sleep on a problem and often the solution is easier to come to in the morning. Thats because our brains dont stop overnight, i find i need to take 2 paracetamol when i cant switch it off.

It just helps calm things down. I have trouble controlling my body temperature too, ridiculously hot when everyone else is bundled up in sweaters and vice versa.

When my GP prescribed me pregabalin for my pressure headaches i found this medication has also helped with my nerve pains and the sensitive skin issue.

The paracetamol were given out routinely at bedtime when i was in hospital, if i refused them i was considered very strange!!!

Janet x

[cat3]

With the absence of any other stimulus we hear our body's 'workings' and notice every discomfort so much more than during the days. My tinnitus drives me nuts once I lie down, especially when it amplifies my hearbeat, and there's nothing to distract us from every itch and pain. I have sleeping tablets, but sometimes they just can't knock me out !

I have a pedestal fan facing me (even in winter sometimes) which encourages snuggling up rather then tossing & turning. And a low volume boring radio programme can often help to send me off to sleep.

But even those fail occasionally and, like today, I'm exhausted after a sleepless night but have an appointment so need to push through it.

I really sympathise Deborah & hope you'll find something which works for you before too long. xx

[deborah27]

thankyou all for your replies, you have made me smile with a real sense of belonging. i feel less afraid, just thinking of all of us doing very similar things, like some kind of weird night time ritual. can you imagine all of us in one great big enormous bed, what a nightmare that would be! lol.

[Kirk5w7 in reply to deborah27]

😂

[Elenor3]

Hi

I also have similar irritating sensations at bedtime which I agree with other replies are maybe a but yo do with we are more aware in the dark and quietness of being in bed.....everything is amplified.

To avoid these things grabbing my attention I use the radio which I set on a low volume and set it to go off after 15 minutes.

It does help with the tinnitus but not so much with the itchy irritated skin feelings. I've tried pure cotton bedding / skin moisturising creams and just about everything else. One thing which helps is having the room temperature lower. I wish you luck with finding help with a calmer night. The neuropsychologist told me that being hyper-vigilant can contribute to all these exhausting sensations. Perhaps a medication to reduce that might help? x