I’m so fed up living with these sensations in my brain - the front of my brain feels scorched, numb, constant dull pain and my whole head is ringing. Just can’t cope with this, it’s been like this for so many years. it humiliating that it’s affected my cognitive ability too and i can’t feel emotions properly or sleep well at all.
incredibly distressed and just don’t want to cope with this any longer. it’s ruined my life. just don’t know what to do anymore.
suffered headaches like an ice pick was digging around up there?! Took it that it was the brain rewiring? Have improved in so many ways, my .5 of surviving neuron was busy clearing away all the clutter?! Even found the other part of him!! Good luck with the housework!!
Hi, sorry to hear how much you are struggling. Big hug. Has your GP/neuro doctor not been able to help with this, perhaps medication review..?I hope things get better 🙏
hi Dann I know this has been my latest answer to so many post but I have started using the HeadSpace App and for me has helped so much .. something I thought would be good has made more of a positive impact than I thought would be in only a couple of months .. give it a try Dan it’s free for two weeks then £40 for the year if you like it .. it really is shit to be living in this world with not just physical but also emotional problems .. it’s working for me and my life even pre TBI has been a struggle for many decades Sue 🙂
Hello im a new member i had a brain tumour 2012, i get brain zaps especially if im tired, overwhelmed and hormonal.. its a vicious cycle
Sorry to hear that. I know it's challenging sometimes. Everyone's case is different but I hope you can find a way to cope (I had cranioplasty in childhood and that healed but two years ago I would suddenly get some sharp shooting pain in the place of the surgery; more than 30 years after the operation). As it turned out, somehow I developed a crack in the plastic part of my skull and it healed itself with time.
One thing I would suggest though is to try multiple options. When I first got the pain, the doctor here was useless and pressed the plastic part of my head (very painful) and recommended taking some medicine that I had a bad reaction to with a possibility of having a steroid injection in my head (he didn't even say why I had the pain and suggested that maybe it was due to age; after I asked). I didn't listen to him and got a second opinion from another doctor. He found out about the crack. I didn't tell him anything about the first doctor but he told me that the worst thing I could do was have a steroid injection in my head as I could end up in hospital for 6 months.
Take care and all the best
I see this has been a feature of your life for many years Dann2. I know you have reached out intermittently and people try to say supportive things. I’m not sure if you take anything on board or receive any of the inputs that people suggest ? You tend to go quiet and then post a similar plea so I am not sure if any of us help or get through.
One thing seems certain is that there is no wonder cure for your symptoms and as they have been around for years I assume that at least some of the time you tolerate them? Perhaps in times of distress and loneliness they seem worse?
The thing about our chronic symptoms is that they tend to become part of our life and we have to accept that in the end. Once we accept that this is it we have a chance to move on. The symptoms will not go but also they will not worsen. Yours have been the same for years. The only thing that changes is how you react to them at different times.
This proves the spiritual teachings to be correct - that it is not the situation we are in that is the problem; only our reaction to it. We have a choice about that.
If you cannot change your symptoms then you must learn to accept them and live with them. Resistance to them and battling them and feeling angry about them become the larger problem and results in making you more distressed.
I think a spiritual teacher rather than a clinical person might help you as after all this time no one else has been able to.
hi, yes, i post on here in times of real distress. i always read the replies and try to take any advice on board, but find it difficult to interact further because of my problems (concentration, mental tiredness,) and also because of the tiredness i have dealing with these issues. part of me hates talking about it and finds it exhausting.
I’m experiencing some confusion at the moment as well, which is upsetting. i have an appointment with a pain specialist lined up, which i’ve been waiting for for about a year. my GP has basically told me to ‘move on and accept it’ too, which just leaves me feeling on my own and very isolated. i don’t have a dedicated neurologist.
i may try Headspace app to help with my general mood, that may be a good idea, if i can stick to it, but the fundamental issue (damage) seems to not be improving at all, which is devastating for me.
thanks for your reply and taking time to read my history.
I know that acceptance can sound like it’s giving up but it takes a huge amount of courage to accept things that we are unable to change.
Once we stop fighting to swim against a strong current and learn to go with it so many wonderful things can happen and new opportunities arise. Digging in and resisting our situation is not only exhausting but it’s sole destroying.
I hope you find sone answers in your upcoming appointment and that you find sone peace with Headspace or something similar.
I'm sorry Danny that I've just come across your post.
First thing is to ring Headway. Or the Samaritans when you feel that low.
Hydrate, hydrate, hydrate and hydrate some more.
When my brain has been pushed I get that really horrible feeling (a bit like a child focussing light through a magnifying glass🔎 onto grass........you can see the grass darken/ feel your brain heating and........you get to a point where just one more beam of light is going to start a fire 🔥 .
Hydration is the answer to that one.
Taking double dose of omega 3 can help.
It gets used quickly by our brains and our bodies don't make it.
Be kind to yourself.
Celebrate all the tiny wins.
Tired now. Hope this helps.
thank you, Random phantoms
My mum had a brain injury and I’m struggling with patience 
Bad ringing in ears and constant headaches and pressure in head 
Brain injury and seizures
