Hospital visit : Hi all went to see the rare... - Headway

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Hospital visit

Lisa-Marie70 profile image
β€’23 Replies

Hi all went to see the rare headache specialist at John Radcliffe hospital today, he put me on some new tablets after trying all the others to no avail. These new ones are called Venlafaxine and im only three weeks in so still early days but they are working great on the headaches and depression. Pain is very low and not impacting on life for the first time since the tbi in 2013. Hes so pleased and doesnt want to see me for 12 months unless theres a problem like the tablets stop working in which case i can call him but in 12 months if im the same still then he will discharge me! Onwards and upwards! 😎😎😎😎

Thankyou for your lovely messages. 😁😁😁😁 xxx

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Lisa-Marie70 profile image
Lisa-Marie70
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23 Replies
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Matt3013 profile image
Matt3013

Hey that’s awesome news! So much relief I am sure 😊

Lisa-Marie70 profile image
Lisa-Marie70β€’ in reply toMatt3013

Hi Matt! Yes definately good news! Celebrating with a macdonalds πŸ˜‚πŸ˜‚πŸ˜‚ i know how to live! 😁😁

Lisa-Marie70 profile image
Lisa-Marie70β€’ in reply toLisa-Marie70

Thankyou by the way! X

Matt3013 profile image
Matt3013β€’ in reply toLisa-Marie70

I could eat one of them ☺️x

Lisa-Marie70 profile image
Lisa-Marie70β€’ in reply toMatt3013

It was very good and i had a macflurry! Doing slimming world for the last year so i cannot describe how good that maccys was πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

razyheath43 profile image
razyheath43

venafalxine is a selected seration reuptake inhibotor used to treat depression in case you were wondering! good luck with it xx

Lisa-Marie70 profile image
Lisa-Marie70β€’ in reply torazyheath43

Hi thankyou, Yes sorry i didnt think to explai what the drug was. Yes i was put on it by the rare pain specialist as i suffer depression but the Venlafaxine has an effect in daily headaches, its only been 3 weeks but already pain level has reduced greatly. Im fingers and toes crossed it continues. Xx

demondez profile image
demondezβ€’ in reply toLisa-Marie70

Hi Lisa glad to hear your feeling better now i used to take Venlafaxine they Worked well for me as well x

Lisa-Marie70 profile image
Lisa-Marie70β€’ in reply todemondez

Thats good to hear. Im on 75mg at minute but going up another 37.5 next week i think. How long were you on them? Xx

demondez profile image
demondezβ€’ in reply toLisa-Marie70

i was on them for Two Years but know take Carpazapine Tablets they stop me from having Seizure and Depresion X

steve55 profile image
steve55β€’ in reply todemondez

demondez im having my epilim stopped which i was on for aggression ( im on topiramate for my seizures ) and gradually having carbamazapine introduced.

demondez profile image
demondezβ€’ in reply tosteve55

Hi Steve yes they did help my mood /Depression as well but mainly for my Seizure but when i take them if i am not doing any thing they make me so tired

and i fall asleep so easy until about an Hour then im ok

demondez profile image
demondezβ€’ in reply toLisa-Marie70

forgot to tell you that when i was on Venlafaxine i was on 75mg

steve55 profile image
steve55β€’ in reply torazyheath43

razyheath but its used off something or other for a few other things, i was diagnosed with adult adhd these were recommended for concentration.

Lisa-Marie70 profile image
Lisa-Marie70β€’ in reply tosteve55

Yes I think its great they have other effects too. Its working well for me on the depressionand headache front and touch wood no side effects. πŸ˜€

razyheath43 profile image
razyheath43β€’ in reply toLisa-Marie70

glad its working

Lisa-Marie70 profile image
Lisa-Marie70

Hi thankyou, Yes sorry i didnt think to explai what the drug was. Yes i was put on it by the rare pain specialist as i suffer depression but the Venlafaxine has an effect in daily headaches, its only been 3 weeks but already pain level has reduced greatly. Im fingers and toes crossed it continues. Xx

Lisa-Marie70 profile image
Lisa-Marie70

Ooh not heard of that one? Is it an anti depressant like Venlafaxine? Good luck with it im glad its helping xx

Lisa-Marie70 profile image
Lisa-Marie70

Thats really good to hear. Im feing amazing with my mental health as well on this new drug, I had been on citalopram for depression for a long tine and think it stopped working for me so its nice to get on top of the depression again as well as the headaches. Xx

moo196 profile image
moo196

Woo hoo!

Hope it continues to be helpful

πŸ˜€

lcd8 profile image
lcd8

Congratulations. That's fantastic news. I am treated at the JR too.

Lisa-Marie70 profile image
Lisa-Marie70β€’ in reply tolcd8

I see professsor cader there? My main neuro hospital is Southampton hospital wessex neurologica lunit but i see JR for the headaches and Basingstoke. They send us to a lot of hospitals dont they! πŸ˜€πŸ˜€

lcd8 profile image
lcd8

Yes they certainly do! When my condition was first diagnosed I was admitted to the Radcliffe Infirmary, also in Oxford. It burnt down in the 90s destroying all my medical records with it. So now its the JR - although last time I needed admittance there wasn't a bed and I spent 5 days in my local hospital first which was awful. I am under Mr Cudlip at the JR and also used to see Professor Byrne. But the latter has retired now and I can't for the life of me remember who has taken over from him.

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