This is my first time and I am just looking for any support and positivity from anyone who has been where I am now.
My husband fell off his bike and sustained a sub arachnoid haemorrhage to his right temporal lobe and a sub Dural haemorrhage
He had a craniotomy after 6 days and is now in a general rehab ward with a few neuro beds.
I believe he still has Post traumatic Amnesia. He is progressing slowly and has periods when he is lucid, but he also has periods when he is very confused and agitated. He knows he is in hospital and is beginning to accept what happened, but he is terrified of being in hospital and cries every day begging me to take him home. He feels I have abandoned him (I visit for hours every day).
We are having a case conference tomorrow and they are saying he needs specialist neuro rehab, but there are no vacancies anywhere. They are now looking 160 miles away in Bristol. He will be so isolated there, his friends won't visit and I won't be able to visit every day, and that's the only thing that keeps him going.
They are not coping well with him where he is, and when he gets very agitated they call security and inject him with Lorazepam. He is terrified and so traumatised by this.
Has anyone else been in this situation where PTA has lasted so long and have they seen positive outcomes.
I would love to bring him home and let him have community rehab, but I am not sure I would cope when he gets very confused and I could not leave him for a second
Any comments would be helpful as I am at a loss to know what to do and how to help him