We are 4 months in to this nightmare where my husband has suffered a stroke following surgery for a giant aneurysm. He has had half of his skull removed to eleviate pressure and had started to make some progress with rehab,regaining some purposeful movement in his right side.
3 weeks ago he developed hydrocephalus and has had a shunt fitted , ever since he is hardly awake, is not making any sense when he tries to talk and it feels like he is right back to where he was when he was just coming out of the coma. The drs are non commital telling me only time will tell what will happen, that is so hard to live with day in, day out.
I got to visit him yesterday for an hour, it is breaking my heart, one side of his head is completely sunken now and the other side has a large stapled incision from the shunt operation. He was very difficult to wake and when he opened his eyes, I am not sure he registered that I was there.
Then last night, I rang the hospital to see how he was,to be told he has developed a chest infection and any further procedures ( his cranioplasty) will now be delayed until this is dealt with.
I am sorry for such a long post, I don’t really have anyone to confide in, family do ring to check how he is doing but with the children in the house, I am painfully aware of how they gather every time the phone rings,they miss their dad so desperately, that I don’t go into detail and I am trying to keep this ball of desperation inside, but it’s getting harder.