To anyone who has/or has had/ a brain Tumour.

[dennisleigh]

A CT scan for memory problems showed up a brain tumour about three weeks ago. Neurologist report,says: " a CT scan of the brain shows a low density lesion in the left frontal region with surrounding oedema. High on the differential is a tumour and I am therefore arranging for a MI Scan of his body."

Last Friday I had I had that scan but have not yet received any report.

What do you folks understand about this, what do you think, is the next step. A biopsy? If so how disturbing is this. Any comfort you can give me would be appreciated.

Thanks and love to all.

Dennis

[Hidden]

Phone Headway and chat to them. They are experts at this sort of thing and can give you lots of good advice.

[dennisleigh in reply to Hidden]

I now see that five of you have been kind enough to reply. Thank you so much for that. It is so comforting to know that there are friends out there that understand our doubts and fears and not think us total wimps!

Keep smiling.

Dennis

[cat3]

Hello Dennis. I feel for you ; these early stages when we're still in a state of shock from the initial findings are pretty mind blowing. All you can do for now is get all the information you can (I really recommend you phone the Headway helpline as Jan (above) suggested) where you'll get the information & support you badly need..

The number is 0808 800 2244 (office hours--free call).

With any serious health condition we just want it to go away. But, ironically, having all the facts and understanding the plan of treatment can be empowering, and give you back a sense of control.

Speak to Headway and let us know how you get on. We're here for emotional support any time you want to offload Dennis.

All best wishes, Cat x

[peaches2]

Hello again Dennis,

I'm sure they are doing whatever they can to make sure that they give you the best help available and that is why they asked for a body scan. They will get back in touch with you as soon as they know what exactly is going on and that is when you will know what your next steps will be. I too was diagnosed with a brain tumour. I know it's much easier said than done but do try not to overthink as it doesn't help at all. I had surgery to remove mine and two years later I had radiotherapy and today they gave me my results of that and said that the tumour is now shrinking, so please try to take some comfort from that and believe that you can do this, we are all stronger than we think and you will get that inner strength from somewhere to help you along the way. I'm always here to talk. You take care of yourself.

Best wishes.

xx

[lcd8]

Hi Dennis. I don't have a tumour but an Brain AVM which is similar in some ways. I'm afraid I fear no one can really answer your question except a medical professional. I have MRI scans every 3 years so the docs can monitor my AVM. The results do take a while to come back because first they have to be processed and then a consultant has to look at them and formulate their opinion. They should however call you back to the hospital to discuss their findings. The next stage for me was an Angiogram where they inject dye to see where it runs. But I'm not sure how relevant this is with tumour patients. I am sure at your consultation they will tell you the next step though. Wishing you the very best of luck.

[dennisleigh]

To Cat, Peaches and Icd8, Thank you so much for your responses. I gain comfort from all you say and appreciate the trouble you are taking. I hope to get results from the MRI scan this week, sometimes feel I would rather not know! I will keep in touch and thank you all again.

Regards and love as appropriate.

Dennis