Headway
5,749 members8,111 posts

Hi

Hello, I am new on here. My 12 year old son had an accident which left him with a TBI. I joined to see how other people get on really, read peoples stories and maybe get some tips on how to help him x

17 Replies
oldestnewest

blessings,i bealive there is a childrens brain injury trust,perhaps the headway helpline can point you in the right direction.Welcome to us lot! iam a wife of a b,i survoiur,as to how to help youre son,do as much reserch as you can about b,i and be postaive and supporting i know the postaive part isnot always easy,so i count the good days and not the bad xxx

1 like
Reply

thank you, i try to do the same. we are very lucky to still have him so we keep smiling and trying x i will try headway :)

1 like
Reply

Hi Becky

Welcome to the forum. There are so many people here and all happy to help. There are relatives, carers, the occasional professional and of course the rest of us with the wide variety of brain injuries.

The Headway contact details are in a pinned post.

Looking forward to getting to know you.

Lovenhugs

Xoxo

Reply

thank you so much, what a lovely message xx Headway cant help because of his age, but they have given me some ideas and will try CBIT next xx i am just at the learning stages i think, so much information to take in x

Reply

Hi Becky and welcome. How long ago did your boy have his accident, and what symptoms is he troubled by ? x

Reply

Hi Cat, Travis only had his accident in July this year. physically hes doing really well, sometimes you could be fooled it hadnt happened. He cant play sports and thats the one that kills him. Hes so down, he tells me that i got what i wanted when he woke up and he didnt :( its hard for him to aapt to his new life i think x

Reply

Hi Becky

Has Travis been assessed in any way? Depending o the nature of his injury you could try contacting a play therapist.

My personal feeling is that play is a wonderful thing to help learn and embed skills. I play as often as I can and I'm probably old enough to be his grandmother.

Wishing you both the very best

Lovenhugs

Xoxo

Reply

Hi and thank you for your advice, im sorry its taken so long to reply x we play board games a lot but we did before too. I like the idea of play therapy. It helps all of the family xx thank you again x

Reply

Hi Becky

Shame, I'm so sorry to hear of a child with TBI! I had mine over 2 and 1/2 years ago, and I am now 51.

It always makes me see how lucky I have been. (Marriage, children, career and hobbies all behind me.

Please join your nearest Headway, and they will advise you on befriending groups for your son, and a support group for you!

It's so important to be able to understand the way we feel!

Anytime, feel free to write in!

Good luck and God Bless you both!

Love Debs

😘😘

Reply

thank you Debbie x headway cant help us, hes too young, but we are goin to try Cbit, Headway suggested them. Thank you for your message, hes doing really well physically, and we will learn together how to get on , its very difficult isnt it xx

Reply

Hi Becky,

I was 11, almost 12, when I had my first operation leading to brain injury. I was diagnosed with a brain tumour back in 1996.

The tumour was also causing hydrocephalus...blockage of Cerebral Spinal Fluid. Back in the 90s, docs did not have a name for the blockage, I later found out myself of hydrocephalus.

So because of hydrocephalus, I have a VentriculoPeritoniea l shunt. VP shunt in other words.

The tumour calcified, turned into bone, meaning the flow of CSF is still blocked so I have a shunt in all the time.

So that was 96 and it isn't over there.

I have had further ops and I had a second tumour/cyst diagnosed in 98.

Altogether I have had 11 operations on my head through many years of my life. My last op was in 2010 and that is going to be my last op. How do I know that? Because I said so :).

I believe that a poor diet is why I ended up with 2 brain tumours.

Read up about Aspartame, a disgusting chemical made by a very horrible chemical company called Monsanto.

I used to drink tons of Diet coke and Diet coke and other sodas are filled with Aspartame.

Also you might want to read about the bodies PH system which could keep the body healthy and steer clear of cancer and so on.

Cancer is a business. there is a cure for it.

Take care,

MJ

1 like
Reply

oh wow, that is an awful lot to happen to one person, i dont know how you cope!! we are struggling already and clearly beginners at this!! Travis had his accident this year, so everything is still very new to us. We try as a family to get on together x Thank you for your advice, i really do appreciate the help xx you take care too :)

1 like
Reply

Hi Becky,

You are in the right place for fantastic advice here. I had my accident in May this year and have learnt so much from this forum, its been really helpful. I truly hope your son is ok and gets himself back as quickly as possible. My main problem is brain fatigue and I still get it now but iv learnt to accept it and can deal with it when it comes.

I hope to talk to you some more and have a good evening. XX N

1 like
Reply

Hi sorry for such a late reply, we are learning all the time and managing. Thank you for your message, it must be hard for you too. Every day something new hey? We both send our best wishes to you too. We have managed to make contact with CBIT and they're going to come and visit us too. A long road in front i guess. Take care xx

1 like
Reply

Hi Becky,

Yes a long road but will be a fantastic journey. Iv just begun mine and its getting better every day. God Bless to you and your family. XX

Reply

Hi, welcome to the site. Fire away, join in, ask anything you like, somebody will be more than happy to help in any way they can. We're all like minded souls here.

Best wishes

Baron

1 like
Reply

hi becky welcome.

you and your son have along road ahead of you some good alot bad. always be positive but look at the worse case scenario. it seems contradictory but in time youll realise what i mean.

be prepared for a change.....im not the same person iwas before my bi. im ok when i type because i really have to think what im going to put. i get frustrated because i cant always find the word im looking for im aggressive i hate loud noises low attention span

( so he may need support at school ) and short term memory loss.

that is the the very worse scenario, but because your mum you how to just get on with it........so no info from the hospital about how life could be.

good luck to you please keep us up to date

thankyou

Reply

You may also like...