Me talking about my brain (again)

[thepiercy]

HI all. My presentation about my tbi is visiting Devon. If you're near Exeter on 4th Feb do come along and say hi. J

[thepiercy]

oops sorry forgot. If you want to come along please register your place by emailing [e-mail]

[Hidden]

WOW, I salute you! That sounds SUCH an amazing thing to do, huge congratulations. Would love to see it, any chance you could put some upon youtube or vimeo or somewhere? I would like to do something like this = to help educate = make our lives easier! But at mo so muddled and scrambled and home a nightmare and freezing = wouldn't know how to begin, need help maybe.

I completely lost my self-respect and confidence trying (but failing) to do all the things told I must, in THEIR way, by states and others. Lost myself big-time and only now just beginning to be able to think/see what their total lack of knowledge (how I am after ABI and nationality, language etc. I don't live in the UK now) and lack of respect for my disability did to me: sent me into mega anxiety, stress and breakdown. So sick of trying to explain this but not be heard/believed = makes me even more ill.

Everyone says I must write it, draw it but at mo saying it is far easier, nobody listens or cares. Exhausted with my struggle. Need good safe base, a rest and then might/should be in better position to set off again = armed with what I've learned.

I think states WANT to learn (would like to think that) and I WANT to help them but it must be when, where, how and at times which are best for ME and my disability and MY routines/hours. Sick of being told I 'MUST' turn up for appointment far from where I live and at worst possible time of day for me. Way past time they (our servants) turned it around and put US at centre: tell us what they're offering/promising and if we WANT we can ring and make appointment where, when and with choice of people (full info about them given and THEIR ID = they demand ours!) and what happens if their promises are empty = as so often, and we've been deceived/misled.

State services forget they exist for US and they must bend over backwards to accommodate OUR needs. How many times and in how many ways must I tell them the same stuff? They know already. "Fun' to behave otherwise or want to SEE to believe how it made me stressed, anxious and very ill? Push us til we break, don't believe us when we SAY how it feels? Sick.

I wish you all the best and hope you let us know how it went and future ideas.Good luck!

[Nks425]

This is wonderful. Wish I still lived in the UK. I have moved back to the U.S. and would love to see this. If you do put it in utube or something like that please let me know.

Niyani

[RachyBoo]

Oh would love to be able to come and see it, but it's too far away boooo

Good luck with it though

[aqua4]

Hi James, too far for me too but really pleased you are able to do this to show what its really like. Hope it goes well. K

[Alice5]

Too far for me unfortunately, shame.