Hope your all well and living life to the full. I haven't posted for a while but have been replying and generally reading whats been going on.
I wanted to share that I have been doing well and improving with my bi but I took an interesting turn yesterday. I was working on my bike and trying to fix my handlebars and trying different methods but all to no avail, I kept trying and trying and started at 4 and went on till 7 then stopped for a few minutes as I felt the brain fatigue coming on but instead of relaxing and resting I worked on through. Finally got it sorted by 9 and loaded bikes ready for riding today but I felt absolutely drained. Like I used to when I first had my Bi and dint know the signs. I should have stopped but didn't and it caught up with me. I suppose as it hasn't happen for a few months I though I would be ok but sure enough bam and last night felt awful, what made it worse is that I then couldn't sleep so this morning felt like id been hit my a freight train.
Felling ok now though but it just goes to show when the signs are there I must read them and accept them. Just goes to show the damb brain fatigue is always waiting round the corner for me.
God bless all and chat soon. Have a fantastic Saturday evening. XX Nick
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MXman
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It's re-learning. I've explained it to people as being a bit like having a driving lesson, but your instructor speaks a different language, and there might be an angry pig in the car. NOTHING makes sense to me when I'm fogging badly, it took me over an hour to change the bedding last weekend, because I'd forgotten how to do the duvet... All well and good looking back at it and laughing, but I HATED it at the time.
We keep going, and we keep learning. Now, what's the Portuguese word for 'indicator'?
Ah, the dreaded neuro fatigue. It does have a habit of changing it's tactics slightly and catching you out. Just as ya think you've sussed it out it pops up and bites you on the bum.
I also have the problem of not stopping when the signal is given and then ending up unable to function for a few days after. Blimmin frustrating.
The thought of having work commitments which I cannot bend around this issue makes my physically feel sick and triggers major panic attacks if i let it.
I returned to my job 5 months after my accident, I stayed for just over a year. The memory issues and severe fatigue and stresd meant I was finishing work and going straight to bed. Most days I was to pooped to eat. I haven't worked now for 8 months. I do volunteer once a week and I have a Romanian foster dog, where I volunteer fully understand my situation and can now tell if the fatigue is kicking in. I would like to work again but I feel the same as you, constantly worried about not being upto the job and had panic episodes. Xxx
And today's lesson is.......when you feel it coming on REST. Not just a couple of minutes of a break a proper rest.
Many of us still battle the almost overwhelming need to finish a task in one go.
Another factor is that as you improve so does your tolerance for activity and that means that the limits shift. The sneaky little blighters don't let you know that they've shifted they just sit there waiting to be found again.
Glad to hear you are recognising the need for rest.
Hoping it clears tonight and you can enjoy tomorrow.
We often prefer to ignore how much more cognitive energy the simplest tasks now take, to achieve that precious sense of 'normality'. Hope you sleep better tonight Nick and reap some rewards tomorrow. x
Wow thank you all for your loving and humorous replies. Im ready for it today great sleep last night and back to myself. Love the fact that my fellows on here know what I'm talking about although my wife is pretty good too.
Onwards and upwards and whats the Portuguese word for indicator...?
I do exactly the same, it only takes a few good days to forget that if we push ourselves too much that's what happens. I've done exactly the same the last couple of days. Hence I'm now sat in bed typing this. Glad you're now rested, have a great day.
Helloooo, Sorry to hear that Nick but happy to hear you're learning by it!! I def overdo it once I've had a few good days in a row...it's as if we forget how easy it is now to overdo things and we just keep going on automatic pilot until we have spoiled it for ourselves! I think we are all a member of the, "I've done too much for one day club!" I actually overdid it on Friday and Saturday and I'm suffering today, it's a horrible thing, so rem in future, work a while, take a break, work a while, take a break! Easier said than done I know but our brains are fragile (a bit like our hearts now) and they get upset when we don't let them be in control of our bodies. I try to tell myself brain before body, even although the old body can keep going, doesn't mean the brain can! Hope you're having a much better day today mister! xx
Yup - I'm also guilty. Those around me are far more mindful of my issues than I am. Left to my own devices I used to treat the Fatigue Monster like a sparring partner and poke it repeatedly with a stick. Never the model rehab patient, I have at least managed to accommodate it to a degree over time. Having "If I don't have a headache, I'm not pushing hard enough" as my yardstick probably compromised my recovery considerably...! Meh, blokes will be blokes I suppose (why many of us have winded up with TBI's in the first place?).
Funny though as had a fantastic sleep on Saturday night and rode MX on Sunday and rode well but couldn't sleep Sunday night. Hows that happen? Must be the the brain on think mode. N
Hi
When I suffer fatigue I usually say my brain is on Holiday
Hi, afraid to say I'm just the same, there's a sliding scale of how much I push myself, as to how long it takes the following day(s) to recover. Two hours at a party, and I know I'll have to sleep 14 hours that night, 3 hours the next afternoon and about 12 hours the following night. Crazy, such a waste of time. I had my injury 18 months ago, any idea how long this goes on for??? Thanks
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