Oh lawd: This is going to last a lifetime. After the... - Headway

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Oh lawd

B_S_A profile image
9 Replies

This is going to last a lifetime. After the haemorrhage, I thought it was kinda fun (or novel at least). But it's not like in the movies; IT DOESN'T END.

I have a good old 60 more years of this, so I suppose I should just settle in.

Sorry, sometimes I just need a little hissy.

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B_S_A profile image
B_S_A
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9 Replies

Hi Ben

I'm guessing something has happened to bring you crashing to earth with that painful bump of realisation.

It is a hard thing to face, esp for you being so young, but I think the brain is an amazing piece of equipment. There is still hope for future improvement.

Matt2584 profile image
Matt2584

After my first two ops in 96, when I first started going back to school, my mum would walk with me, at first, cos I wasnt that great on my feet back then. I would get stressed out at the lack of balance I posessed and I would say things like "I wish I never had this op". The thing is though, if I never had the ops, I most probably wouldnt be here today to tell the tale. AND little did I know but that wasn't my only ops I had, I had many more after that and my balance only got worse. I wanted to continue with my life as if nothing happened but that is definitely the wrong thing to do.I have had quite a few miserable years being in and out of hospital. Because of my BI I have joined different disabled groups and met lovely people. A friend of mine has told me that they believe good things come from bad things and I completely agree with her there. If I tried to live my life as most other people do, I think I would be in, probably, a worse state that I am in now.

we all have bad days,and some are really bad and we think we can't go on and we hate being like this.

but that is when we have to think of the good times and focus on them or on the this we want to try and do and how we are going to try and do them

being negative is not good for us sometime we can't help feeling it but we need to try and think of ways to get or self out of it if we can it is not always easy i know i don't always manage but perhaps friends and family could help you let them that is not always easy either i know but its worth a try

Kirk5w7 profile image
Kirk5w7

Hi Ben, I get you. All the platitudes in the world won't help, because the reality has struck home, however you do know how to handle it, I know that.

I'm 62 now and my reality is, will I have enough time to make a good enough recovery before my health starts to naturally decline?

Depressing really so I try not to dwell on it and go with the flow!

I'm grateful for every good day, and try to make the most of the not so ones, not good when I've realised I function much better when the weathers warmer.

When hubby retires have to think of moving to warmer climes, if I'm well enough that is!!!

Janet xxxxx

THAT'S THE THING PEOPLE THINK IT'S LIKE A BROKEN LEG & WILL HEAL.

IT DOESN'T !! WE JUST LEARN TO COPE AS BEST WE CAN. IT TRULY IS THE INVISIBLE IBJURY

Matt2584 profile image
Matt2584 in reply to

Hi Zeb,

I have heard someone say that before about the invisible inury. In some cases I agree and some I dont.

I know some people who nave BI and on the outside, they look as if nothing was wrong with them but inside, their mind has been broken and most others, strangers would not be able to see this.

For somebody like me, I have some obvious physical injuries and some people on the outside can be kind enough to help, they realise I have a disability.

I would really say that a brain injury is not an invisible disavility but a changable/chameleon disability.

BI affects people in different ways.

Broken_Doll profile image
Broken_Doll

Don't aplogise ben I empathise with what you've said (only I have a little less years to live with it ;) )

Virtual hugs

Emma x

RogerCMerriman profile image
RogerCMerriman

I think it would be hard not to find V2 of ourselfs fustrating at times. and mine is comparatively mild.

B_S_A profile image
B_S_A

I dunno, ever since I found out my surgery's worked I just feel...empty.

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