SUPPORT & ACCEPTANCE

SORRY FOLKS I NEED A RANT. I KNOW WE'VE TALKED A LOT BOUT LACK OF SUPPORT & UNDERSTANDING POST BI. IT NEVER FAILS TO AMAZE HOW BAD THIS IS.

TO CUT A LONG STORY SHORT MY SISTER & I HAVE GOT TO GET MY DAD'S HOUSE READY TO SELL.

SO FAR HER ONLY COMMENT IS TO SAY "I DON'T CARE ABOUT THE HOUSE". FOR THE FIRST TIME IN 4 MONTHS SHE FINALLY AGREED TO GO OVER THERE TODAY. I'VE WOKEN UP WITH CHRONIC HEAD PAIN TODAY, SO MUCH SO I CAN BARELY STAND TO USE MY ELECTRIC TOOTHBRUSH. I RANG HER TO POSTPONE. RESPONSE WAS: "I'M NOT FLEXIBLE I CAN ONLY DO IT TODAY" WHEN I TOLD HER I WAS BAD SHE SAID " IT'S NOT TOO GOOD FOR PEOPLE WITHOUT A BI YOU KNOW" I AM FURIOUS & VERY HURT. EVEN AFTER 16 YEARS POST BI SHE DOESN'T GIVE A B****R ABOUT ANYTHING BUT HERSELF& HERLIFE..

SHE DOESN'T HAVE TO UNDERSTAND HOW AWFUL THIS IS, JUST ACCEPT THAT IT IS FOR ME & HELP ME - . NO CHANCE. GUESS I'LL JUST HAVE TO DO IT MYSELF WHICH IS REALLY HARD AS I NEVER KNOW

WHEN I'LL BE OK TO GET THE BUS OVER THERE.

IT'S GOT TO THE POINT WHERE , TO SAVE MY SANITY & AVOID THE STRESS THAT MAKES ME SO ILL, I HAVE TO SAY I'VE GOT NO FAMILY I HATE IT.

THANK GOODNESS FOR EVERYONE HERE SO I CAN RANT.

6 Replies

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  • HI ZEB I'M BACK IN LAND OF LIVING NOW AS OF LAST NIGHT. SORRY I HAVEN'T BEEN THERE EITHER TO CONTINEUE TO OFFER SUPPORT - YOU CONTINUE TO RANT AS MUCH AS YOU WANT/NEED. ITS GOOD TO GET THINGS OFF YOUR CHEST AND HOPEFULLY OUT OF YOUR BRAIN TO HELP EASE THE PRESSURE AND STRESS SO THAT THE PAIN CAN ALSO START TO LESSEN IF NOT GO AWAY YET. YES I KNOW ABOUT FAMILIES WHO CARE ONLY ABOUT THEMSELVES FIRST AND FOREMOST. SO ITS A GOOD JOB WE CAN COUNT ON OUR HEADWAY FRIENDS BECAUSE WE ARE A COMMUNITY FAMILY.

    TAKE CARE AND TRY NOT TO OVERDO IT AT YOUR DAD'S HOUSE. Shirley xxxxxx

  • HI SHIRLEY, GOOD TO HEAR FROM YOU,HAVE YOU BEEN OK? I WAS WORRIED. THANKS FOR SUPPORT AS USUAL,IT MEANS SO MUCH.

    TAKE CARE

  • So sorry Zeblet. Your story is repeated ad infinitum. If its not near relatives its others. They just don't know anything about the unique disadvantages the BI survivors have. So mate, you go ahead and rant all you like, you've earnt the right to do so in ways which no uninjured person will understand, so go on have a go, make yourself feel better.

    Don't worry about your Dad's house - if your sister doesn't want to know just put the entire disposal in the hands of a solicitor and tell him to take his costs out of the sale [after clearing it with your sister].

    Try and be very laid back about it.

    If you are being expected to clear the place then there's companies for that too - just take anything you want or that's worth money out before they move in.

    You can b*ll*ck me for sticking my nose in if you want ... I have broad shoulders. Good luck

  • YOU ARE DEFINITELY NOT STICKING YOUR NOSE IN!

    I THINK USING A COMPANY TO PACK IT ALL UP IS A BRILLIANT IDEA. IT TOOK ME 6 WEEKS TO PACK UP MY 1 BED HOUSE WHEN I NEARLY MOVED LAST YEAR. I WILL NEVER EVER DO THAT AGAIN. IT NEVER OCCURED TO ME TO DO IT FOR DAD'S HOUSE. WHAT A TWIT. I WAS GOING TO REPLACE SOME CARPET WHICH HAD SOME STAINS ON IT FROM WHERE DAD FELL & CUT HIS HEAD.MY PARTNER SAID WHY DON'T YOU JUST HAVE IT CLEANED BY SPECIALISTS. AGAIN THAT HADN'T OCCURED TO ME EITHER. BI SEEMS TO HAVE TAKEN MY POWERS OF LOGIC TOO

    ANY SUGGESTIONS ARE ALWAYS GREATFULLY RECEIVED!

    TAKE CARE

  • Sorry that you have all this extra hassle Zeblet. She's probably got herself worked up about going back into the house and dismantling her memories. Try not to take it to heart.

    My brother and I took anything we wanted to keep, and asked the others if they wanted anything then got the auction house in, they took what they wanted and arranged for someone to clear the rest. Now the Hospice will come and clear the house and sell a lot of the stuff in their shop to people who need cheap furniture.

    See what she's like in a day or so, if she's still grumpy go for the take your keepsakes and have the rest cleared.

  • I WILL DEFINITELY CONTACT OUR LOCAL HOSPICE TO SEE IF THEY'D LIKE ANY OF THE FURNITURE. THANKS FOR THE IDEA. I'D RATHER THTI IT WENT TO A GOOD CAUSE. WE HAVE TO LEAVE THE HOUSE 'DRESSED' FOR NOW (OR SHOULD I SAY I WANT TO) UNTIL IT SELLSINOT ON THE TNEEDS A COUPLE OF THINGS DOING TO IT SO IT'S NOT ON THE MARKET YET. .

    I DID SAY TO HER THAT I THINK HER GOING THERE WOULD HELP HER (& ACTUALLY DIDN'T GET YELLED AT) I'VE BEEN OVER THERE QUITE A LOT SO I'VE COME TO TERMS WITH IT EVEN THOUGH I DON'T LIKE IT. SHE HASN'T BEEN THERE SINCE MAY 2013. WE'LL SEE.

    I'M SO GRATEFUL FOR THE IDEAS

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