I'm struggling a bit to write this but it's 2am Mon and I'm dreading another night with severe headache & vomiting which started Saturday with no let-up so far. Main problem is I can't keep essential meds 'down' and I know my blood-pressure is really high..........something I was told to avoid by hospital consultant.........but it isn't being treated at a pretty critical time.
Being too poorly to get to my GP's surgery I know that if I request a home visit I'll be told 'Oh these things usually pass within 48 hours.........just drink plenty and if it doesn't settle, get yourself to A&E' Every time I stand up I'm sick so whereas, in the past, a previous GP (one of the old school) would turn up with a syringe of anti-sickness medication which worked immediately and allowed me to take all my tablets I'm now just a name on the list in a system where GPs seem either unaware of, or disinterested in, the implications.
My pal has taken over now and has assured me 'Don't worry you'll have a doctor here tomorrow morning. I'm normally so tough (as we here need to be) but this is something which 'floores' me and when I recall how all the stops are pulled out to save us from brain trauma this is depressingly poor aftercare.
This has been rolling around in my head all day and now that it's written down I feel I'm not quite so alone. Thank you for being here; offloading does seem to help sometimes.
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cat3
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aww ,hope u start to feel better soon ,glad ur friend is getting dr sorted ,maybe u could ask for antisickness tablets,so ul ave chance for your meds to work ,
arghh my brains not awake properly yet ,so i keep losing thread of wat im trying to say,but i hope ul be ok asap x
So sorry to read this Cat, you are the one who is usually so strong, and "there" for everyone else. Take care of yourself, and we wish you well very soon.x
It is one of the things the non injured don't understand - how much routine illness is amplified when you have a brain injury. Even blowing your nose when you are suffering from concussion is a dreadful experience
Hi Eileen, so sorry I didn't reply last night, saw your message on another post that you weren't feeling well and went off to bed making mental note to contact you today, now I feel so selfish. Funny I've been I'll for a week now, just think its been a cold, but as said everything's amplified, no bal ance cos sinuses are blocked so not been out and so hard to just lift your head up, I get so cross with myself, want to do so much but my head lets me down all the time. Consultant at rehab unit said I'd be susceptibl
Pressed the wrong bit of the screen!!!! To picking up anything going but you don't want to believe it. Hope, this morning sees an improvement for you, let's hope it's over before Xmas.
I'll post a bit more later, not up yet, would be lost without my I pad.
Just read your post and really feel for you, I hope you are feeling better this morning.
Sickness is a real problem when trying to take meds as we all know, you know you need the meds but cannot keep them down-its so frustrating!
Glad you have your friend to help you, thank god for friends.
Like others have said most other people really do not understand/believe what is going on with us so at least we can turn to each other on here(even if it is difficult to write)
Anyway I digress , just hope you start to feel better soon.
Take care
Mick
x
Think I just deleted this without sending it (again) so I'll start again.
Wow do I know what you mean. I had a 3 day pain episode the week before last & like you thought to myself how am I going to get through this again.I'd run out of my pain medicine, they only give me 18 pills every 2 months & I run at about 23 episodes every 2 months. After 16 years of trying every specialist pain killer known to man my neuro put me on one of the triptan family - rizatriptan in an oral lyophilisate presentation it's called Maxalt Melt.. All that means is that comes in little wafer form that melts on your tongue in seconds & gets absorbed immediately. you feel them starting to work in about an hour & the pain is virtually gone in 2. See what your neuro thinks about triptans, maybe there's another one that dissolves or is in liquid form so you don't have to worry about vomiting a pill.
My GP gave me a stematil injection for the nausea one but said you'll stop having it - wrong. The triptan seems to almost stop it now - I'm no doctor but in my amateur mind I wonder if it's because the pain is controlled.
I wish you luck, hang in there, we brain people are the strongest people I know.
sorry to hear about your ongoing problems,and i thought i had problems with my memory problem,but it doesnt come anywhere near what you are going through,and i moan,do not think i could be as strong as you are and i admire you for hanging in there,dont let it beat you,just tell yourself im special you will not beat me,and i know what you mean about doctors,both doctors i used to see 1 has retired and the other has sadly passed away.But im changing to a new medical centre soon and fingers crossed ill get something out of it,wish me luck as i do you,bye for now speak again i hope
Hi Cat. I am Janet's sister and although I haven't got a brain injury myself, I am living with an inoperable brain aneurysm. I follow everyone's posts closely, and admire the way you are all so strong and help one another. I am so sorry that you are having such a bad time at the moment. You are such an inspiration to everyone else, and you do not deserve this poor after-care treatment by the medical services. I know from my sister's problems how frustrating it can be. I do hope you are feeling much better today, and have got the help you need and deserve. I wish you well, and look forward to hearing that you are strong again. Very best wishes Cat, Jenny. x
Hi Jen, hijacking this post just to say hope you got your Xmas cards, I'm going out to post mine soon, looks like a beautifully day out there, shying away from the cold though. Spk tomorrow xxxxx Janet
Hi everyone. I'm overwhelmed by your lovely comments and good wishes..........just found them all.......... still quite poorly but will thank u all properly after this subsides. Love you all Cat xxxx
Oof, sounds really rough, Cat. I'm so sorry you're feeling so lousy. Do hope it passes soon and that you get some useful medical attention. It is just horrible when you feel truly dreadful and the medics see you as just another name on the list - a lonely feeling. Think we've probably all been there in one way or another!
Hang in there and look after yourself. Sending you healing thoughts.
Hi Ben...........sorry only just found your comment. Thanks for the morale-boost and I can honestly say I have now annihilated that little bug(ger) & am back on my feet again.
hello there our lovely friend CAT,SOOO GENUINELY SORRY TO HEAR YOUR LATEST NEWS,I AM SURE WE ALL FEEL 4 YOU!! AND AS YOU SO RIGHTLY STATE WHILST THE RICHARD HEAD POLITICIANS CONTINUE TO HAND DOWN PITHY PLATITUDES AND STATEMENTS ALLEGING THEY CARE ABOUT THE MOST VULNERABLE- IE US HERE ON THIS EXCELLENT SITE AND THOSE THAT SADLY ARE NOT YET,THE SORDID " WE CARE MESSAGE " WOULD DO FAR BETTER IF WRITTEN ON CHEP TOILET PAPER ANYONE AGREE??? THEY CLAIM WE VULNERABLE COME 1ST BUT I TOO HAVE 1ST HAND EXPERIENCE TO PROOVE OPPOSITE....THANK YOU CAT IF U DO NOTHING ELSE TODAY ( AND YOU CANT AND SHOULDNT !!REST BEST) YOU HAVE DEFINATELY GALVANISED ME WITH THE SIZE 10 BOOT UP ME BACKSIDE NOW THAT I AM OVER SEVERE COLD TO EMAIL LORD CAMI KNICKERS AND REST OF PARLIAMENT inc JEREMY HUNT/C/ HEALTH MINISTER. TO EMPATHISE WITH THE VULNERABLE.AND PUT THEMSELVES IN 1 V PERSONS' SHOES FOR 1 NANO SECOND. I REALLY DO HOPE YOU GET TO SEE A DR ASAP AND THE ANTIEMETIC U REALLY SHOULD HAVE AVAILABLE ON OPEN SCRIPT ASWELL?!!! TAKE CARE SPECIAL PERSON XX I WISH I COULD WRAP YOU IN A GIANT DUVET ETC.SENDING E-CUDDLES & HUGS HOPE YOU HAVE A GOOD FESTIVE SEASON.
Thank you so much Sassy for your lovely/funny/comforting message. I really am much, much better now and back to dashing around shopping & wrapping presents etc.
The problem with the anti-emetic (which I always have a supply of) is that when things get so bad I can't keep it 'down' for more than a few seconds.........nothing stays down, not even sips of water. So it's an intravenous dose I need .......but can't have unless the GP agrees to visit and administer it.
Anyway, I'm ok now and all the supportive/kind messages I've had from people are worth all the presents 'under the tree' and I feel blessed to be in such a wonderful community as ours.
thank you 4 taking the time to reply out of your never ending hectic schedulex am really happy that you r once again up and running( ooops no pun intendended as I too had the displeasure of a surprise visit from uncle nori.virol in middle of night.for those who have never had it I pray u never get it.As Cat can verify it's like EBENEZER SCROOGE ON KETAMINE WITH FIZZY ALCOHOLIC DRINKS MIXED IN. BLURGGHH.HUEY DOOEY AND LOOY!! DEFO ONE COCKTAIL PARTY TO REFUSE THE INVITE.hERE'S HOPING CAT FINDS A LARGE PRESENT OF HEALTH , WEALTH AND UBER HAPPINESS ALL THROU 2014! XX THIS GOES TO ALL OUR SPECIAL FRIENDS IN THIS WONDERFUL COMMUNITY SITE.TAKE CARE CAT N ALL.I AM AWAY ALL OVER XMAS SKI ING WELL 30 FAMILY MEMBERS WILL BE TAKING PART IN THE ACTIVE PART ME? WELL COME ON GUYS SOMEONE AS TO GET THE APRE PARTIES GOING DON'T THEY??? N I AM VERY GOOD AT THIS BIT OF THE HOLIDAY SEASON.HOPE YOU ALL ENJOY THE WINTRY WEATHER THAT THE OH SOOO ACCURATE DAILY EXPRESS HAS ONCE AGAIN FORECAST.JUST FOUND HAND WARMERS WHAT A BOON-- MUCH BETTER THAN A HOTTIE BOTTIE AS THEY LAST AT LEAST 6-8 HRS WHEN TUCKED INTO A PILLOW CASE.LOTS A LOVE FROM HAZY CRAZY SASS BALL OF FUN.!! XX
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