Hope someone can shed some light onto the why's of the following questions. Why do I still feel so ill? My energy levels seem non existent- I have to pace my activities for my day/week. Ferritin/Hb count continue to be low (Ferritin ranges between 4-10. Hb between 6-11) icy cold hands & feet. when stressed/ gone too long between meals & having just eaten. As still go on melt down & concentration levels affected by these also. Continuing stomache/bowel problems- fluctuate between impacted/severe bouts of diarrhoea. Painful bloating.
Prone to UTI's/Kidney infections? Never had a Endoscope-just blood test positive for CD. I'd had a 18 month experience of Severe Asthma-no control despite oral steroids & 3 different Inhalers & night time meds for mucus prodution control. Link was later made by 'locum' Dr - of symptoms. Who had requested range of tests- gyny biopsys/ scans & blood tests. Paramedic intervention/blue light trips to A&E & time spent in Resus- all following days when not hungry- so just had sandwiches! Or friends had given me cans of Guiness to sample- to boost my Iron levels! So hope 'you' then understand my reluctance/ argument with hospital consultant, who had insisted on a 6 week Gluten diet for Endoscopy. Test- to 'Just' confirm blood results. Turned argument around by asking- Have you ever known a patient have a blood test score as high as mine & not be a Coeliac? Response had been - No! Recent Colonoscopy/ Biopsy have come back 'normal' but symptoms persist? I am 50 years old- diagnosed in mid 2005. Have had Arthritis since 18yrs of age. Gp suspected IBS in my 30's. Asthma still present though better controlled/managed through daily meds. Action plan in place & self checks of peak flow. Had breakdown/ burnt out in late 2009. My Son- who has SLD & Autistic
Had, had a severe allergic reaction to medication. Spent almost 6 months on a Neurological ward- 4 months in a Nursing Home 40 miles away. Took months of arguing/pestering for tests & 2nd opinion. Before his diagnosis made. Now has permanent Physical Disability/due to miss diagnosis & faliure of intervention meds being given. My 'burnout' occurred after his return to his Specialist Autistic Unit. Which now prompts another question- Are CD ..flare ups/have episodes of intense itching. Blisters to just 1 foot after family/trauma's & dramas etc affected by Post Traumatic Stress Disorder- which is my 'latest' handle! Sorry for waffling on! But GP isn't looking at the whole picture-