Roemheld Syndrome?

[lclark7335]

I am experiencing palpitations every night on lying down. They are keeping me awake. I feel like I develop a huge bubble of air which is pressing on my heart. Belching doesn’t help. It feels tight. Im fine in the day. This just happens at night. Someone suggested Roemheld Syndrome or gastrocardiac syndrome. Does anyone have any experience of this? I have a telephone appointment with my GP tomorrow.

[Hidden]

I've had issue of late of heart palpitations, particularly at night. As I'm pretty messed up at moment with non-fixing coeliac/additional foods reacting like gluten, I have been putting it down to lack of iron which can cause palpitations. I used to get that quite a bit before I went gluten free. I've never heard of Roemheld Syndrome. Good you have GP appointment booked.

[Katkin1706 in reply to Hidden]

Pls always get serum ferritin checked. My iron is fine but GPs don’t routinely check ferritin.

[Kate37]

I have exactly the same symptoms and was diagnosed with POTS a number of years ago. I was treated with Bblockers which have stopped the palpitations and am still investigating and trying treatments for the belching. I am very interested to see if you find a solution and will let you know if I do

[lclark7335]

Well not got very far. 48 hour heart trace shows I am having frequent ventricular ectopic beats. But sinus rhythm, no arrhythmia. Blood pressure normal. So no treatment, no suggestions to help. Bloods all normal. So no solution I’m afraid. Seems I have to try to live with it.

[Ukulelelady1]

Have you tried propping yourself up in bed while you sleep? It might help in the interim. I know how frustrating it is when you are trying to solve health problems.

[lclark7335 in reply to Ukulelelady1]

Hi, I’ve sent for a wedge type thing to see if that works!

[Ukulelelady1]

Hopefully it should help. The disadvantage of the wedge is, they can be hard or uncomfortable. I’ve got the top of our bed supported on blocks that my partner carved to fit the feet, but not for the same reason - I get reflux and gave a hiatus hernia. So if your wedge turns out not to be too comfortable, you could try something similar maybe?

[lclark7335 in reply to Ukulelelady1]

Does the bed being raised not affect your husbands sleep?

[Ukulelelady1 in reply to lclark7335]

He says no. He has a hard physical job, so it doesn’t tend to bother him. I can’t vouch for other, shall we say ‘lighter’ sleepers. He notices it being on an incline because it’s about 6.5 inches (16.51 cms), but I prefer the bed raised to having a wedge because I have fibromyalgia as well and my muscles in my upper back can go into spasm propped up on a wedge.

[Hidden]

YES!! I am certain I have this. Very few people know of it or have heard of it.

Every time I have a stomach issue even if it's just a little bit of acidity I start having episodes with eptopic beats fluttering tachycardia bradycardia.

I have no doubts.

[JVG-2023]

I've experienced this for many years. I've had a full cardiac work-up, which was all normal. Here is what I've found very helpful over the years: cut out any food that may trigger bloating (which then triggers palpitations via the Vagus nerve). For me this was primarily dairy. Try digestive enzymes. This made a huge difference for me but the symptoms persisted, to a lesser degree. Most recently I cut gluten from my diet and I'm amazed at the difference I feel after a short time. I'm more clear headed, my skin improved, I have a ton more energy and I don't have that heavy feeling around my middle. It hasn't been long enough to be sure, but so far the changes are impressive. It's unfortunate that we have to figure all this out on our own. I'm trying to let doctors know about Roemheld . None of them seem to have ever heard of it. On another note, there seems to be a connection between thyroid problems (hyper or hypo) that may make you more sensitive to gluten. The gluten molecule is similar to thyroid tissue. I had a hyperactive thyroid so this all seems to make sense. Good luck!