A bit of background: I suffer from pernicious anaemia and hypothyroidism (and suspected CFS).
Since I was young, I’ve suffered from stomach problems (stomach aches, constipation, trapped wind etc - basically a number of the symptoms of coeliac disease). I used to visit the doctors regularly but they could never get to the bottom of it so I put up with it for years. Back in ’09 I decided it was time to do something about it. I was screened for coeliac disease back then, but as I was going through stuff and barely eating I’m almost certain gluten was not a component in my diet. The "Tissue transglutaminase IgA level” was 0.2 U/ml.
I saw a gastroentrologist who tested for helecobactor pylori (apologies, I can’t remember the spelling) and also had an ultrasound. Nothing showed up. They also wanted a stool sample but, as I was young and confused, I didn’t understand how to do the sample or where to ‘deliver’ it, so I sat it out. Since then I’ve had it tested for parasites... all negative! They put it down to IBS and left it at that and I had the pleasure of having to put up with it.
In 2016, I was (finally) diagnosed with hypothyroidism, and from reading about stuff I went completely gluten free - and I haven’t really had stomach problems since! Upon drinking something containing barley my stomach problems started up again.
So, I would like to know, is it worth re-introducing gluten into my diet to get a diagnosis (and have to put up with the symptoms until then) or just continue gluten free and hope there’s no long-term damage IF I turn out to have coeliac disease.
I did mention the whole gluten-free thing to my doctor briefly at a follow-up for my thyroid but nothing more came of it as I’ve got plenty of other health things to deal with right now. I hate feeling like a hypochondriac...
Is it worth the pain for a solid diagnosis of coeliac disease or should I continue to manage it without one?