Choliac : Hi . I was tested for choliac... - Gluten Free Guerr...

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Choliac

Lulu2011 profile image
12 Replies

Hi . I was tested for choliac in Dec 2015 . Came back negative.? so I thought I would be ok with bread ect again . Ate bread for a couple of days recently and I feel so ill with all the symptoms I had before I took all wheat products out of my diet . Am reluctant to go back to the doctors as I don't know how I can be helped .?

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Lulu2011 profile image
Lulu2011
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12 Replies
Fruitandnutcase profile image
Fruitandnutcase

To be honest I would stay off bread / gluten - if you felt better not eating it why take the chance?

Regalbirdy profile image
Regalbirdy

Hi

Were you gluten-free when you had the test? If so, it may have caused the negative result.

No gluten in the diet = no antibodies to gluten.

If you removed gluten out of the diet after the test was done, then you may have a different form of gluten sensitivity.

Lulu2011 profile image
Lulu2011 in reply toRegalbirdy

Yes I told the doctor this

Fruitandnutcase profile image
Fruitandnutcase in reply toLulu2011

You'd think he would have realised you wouldn't get a good result if you weren't eating any gluten :(

Lulu2011 profile image
Lulu2011

Thanks for your comments .

Lulu2011 profile image
Lulu2011

Will go back to docs and tell him what has happened .

Patricia2015 profile image
Patricia2015

Gluten allergy can only be proved 100% definitely by a biopt via gastroscopy not by blood. If you had a blood test that result is not conclusive.

I've had a gastroscopy and the result was negative however I'm very sensitive for gluten especially for wheat with my underlying conditions (a.o. Crohn like ileitis and Lupus like connective tissue disease). Therefore I stay away from gluten.

I would advise you this too if you got sick after eating (wheat) bread.

Thurgolady profile image
Thurgolady

Hi Lulu, you probably had the bog standard coeliac blood tests, rather than the more refined tests they can now do. I agree with what others have said that if eating gluten/wheat makes you ill then stop eating it even without a diagnosis, though as you've been eating it now would be a good time to continue and to have the tests done again to try to get an official diagnosis if possible.

Lulu2011 profile image
Lulu2011

Thank you .

angelias profile image
angelias

Hi Lulu, it really seems incredible but some doctors just don't know and they misadvised patiehts as a consequence. In my case my blood tests were positive and despite knowing I was going to have an endoscopy two different doctors at the same practice told me to stop eating gluten.

Lulu2011 profile image
Lulu2011

I know it's all confusing . I will go back to the doctor again thanks

lo2748 profile image
lo2748

I also had a test for choliac,it came back negative,i stopped eating any thing that had gluten in it, and now i feel so well cannot beleive how well i feel.

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