Just wondering if anyone has had any success in getting an NHS healthcare professional to diagnose them with NCGS... I've been ill with supposed IBS for 6 years the last 18 months being constant, chronic, debilitating symptoms (and dramatic weight loss) which culminated in Colonoscopy and Endoscopy (with duodenal biopsy). All negative for anything sinister, and i've been repeatedly blood tested by different GP's as, quote, 'that sounds like Coeliac Disease', again all negative. I apparently have 'nothing' wrong with me! Finally out of desperation, feeling so unbelievably ill and several months after the Gastro doc who did my tests despatched me and blithely said with no explanation ' oh, you might try giving up wheat', i decided to go GF. Two and a half months in and a few blips along the way, i feel greatly improved. I actually don't want to believe that this GF diet is working, but it is. Now i'm really keen to actually see someone who can give me a more informed opinion (i know it's a vague area at the moment, so not expecting too many answers) as i really would like an expert overview. I didn't think i'd be desperate for an 'official' diagnosis if the diet worked (and it certainly seems to be working) but i feel like i'm in a diagnostic no-mans-land. I've just managed to get a dietician to recommend that my (pretty useless) GP sends me for a wheat allergy test, but I really would like my medical record to at least be accurate if this is what i have. Anyone had any luck? Anyone been to Royal Hallamshire Hospital by any chance (they seem to be the leaders in the field as far as i can tell)??
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