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narrow angles

Bonniebear21 profile image
ā€¢8 Replies

everyone

long post please bare with šŸ™šŸ»

in 2016 I was referred to the Eyecare centre for swollen optic nerve later diagnosed with IIH - which Iā€™m now in remission for.

apparently, at the first appointment it was documented I had narrow angles, now this is news to me.

In September I had an appointment at the Eyecare centre as theyā€™ve kept me under review yearly and I saw an advance nurse practitioner who mentioned the narrow angles but nothing to worry about I was told.

This didnā€™t sit right with me, and I googled narrow angles - big mistake ?

I then called back to the Eyecare centre and explained I was concerned about the narrow angles, and they arranged for me to have an appointment with a consultation for ā€˜reassuranceā€™

At the appointment with the consultant he told me i did have narrow angles and suspected plateau iris - although my eye pressures have been within normal range 17 - 18 ish

He arranged a UBM scan which Iā€™ve had and the dr who performed the scan said she agreed with the consultant that I MAY benefit from laser iridotomy. When I asked her about plateaus iris she said ā€˜hmmm a little bitā€™

I have my follow up with the consultant on Monday to discuss next steps I presume.

My concern is, why now, when theyā€™ve known about it all these years ( Iā€™m only 37 ) my vision is very good and I just worry that having a laser iridotomy at this stage might cause me problems I wouldnā€™t have otherwise had ( again Iā€™ve been googling)

Iā€™m just so unsure where to go with all this, Iā€™m an carer for my disabled daughter and I need to be ok for her.

This entire situation has really effected my mental health, dealing with all this just before Christmas too.

In really would greatly appreciate anyoneā€™s advice at this very stressful time

Take care - paula

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Bonniebear21
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SuxS profile image
SuxS

Hi! I donā€™t know how much I will help you, but iridiotomy is preventing procedure for people with narrow angles. You pressures is good now, but if something went wrong he will be arise for couple hours, and maybe make seriuos damage on optic nerve, and vision will drasticaly change. So itā€™s better do something to prevent further problems. You will get another opinion on appoitment so you can made right decision. Just stay calm! Wish you luck!

Trekfan profile image
Trekfanā€¢ in reply toSuxS

Please note this is only my opinion and you should research this yourself to make a decision. I have lost vision in one eye because I used a decongestant and I did not know I had narrow angles until I saw an ophthalmologist. Because of the decongestant, I experienced closed angle glaucoma. I found out that if you have narrow angles, you need to avoid certain medications including some dilation drops (look up scientific papers on this topic). Unfortunately, the spray went directly into my sinus, so it was more hazardous for me. These decongestants do not have any warning labels for this. I was also told to have an Iridotomy for my other eye which has not been affected. I have refused because I have seen some clinical studies that do not show very supportive evidence that this will indeed work. I have had two Iridotomies on my affected eye, and it has not improved my vision. I apparently lived with my narrow angles for a long time, and did not have problems because I did not take these medications. I normally do not use decongestants, but unfortunately I did at this time. Good luck and just do your research to make a decision.

Bonniebear21 profile image
Bonniebear21ā€¢ in reply toTrekfan

hi there

Goodness that must have been really tough for you, Thankyou for sharing your experience with me.

Up until September I had also been using decongestant, antihistamine and taking setraline !

Iā€™ve done a tonne of research ( thanks too anxiety ) and itā€™s frustrating to find such polarising information

The consultant did say to me that if I had an angle closure attack in the future that I would have wished Iā€™d had an iridotomy šŸ¤·ā€ā™€ļø

Itā€™s very difficult x

blondie120 profile image
blondie120

hi ,

I couldnt sleep an was looking at posts an saw yours , ā€¦

I found out i had narrow angles in fact extremely narrow , in both eyes an plateau iris as well, my pressure was 20 an 19, i was having pain felt like a needle stabbing me through the eye an muscle ache in the eye thats how i found out about my angles, i had iridotomy done to each eye, it didnt take so i had to have it done again , it worked an then i had to have the other laser all the way around each iris to combat my plateau iris , that wasnt pleasant but they said it worked, made my browny green eyes the colour of dirty dish water but eventually my eye colour came back, i have 20/20 all this was done 2016, im now having the same pain in my eyes so im back to eye hosp soon an my vision is off , but they think its my RA now .

while i was waiting for all these opps it messed with my mental health i kept crying it didn't help that one specialist told me i had a 75% chance of going blind if i didn't have the opps, life is hard as it is without that so i was freaking out but if they offer you these opps take them the alternative is too awful ,

I hope my experience helps you , good luck with it try an have a great Christmas .

Bonniebear21 profile image
Bonniebear21ā€¢ in reply toblondie120

hi there

Thanks so much for taking the time to share this with me, Iā€™m not sure what RA is? Which you said they think you have now?

Iā€™ve written another post on the group today, because Iā€™ve just had my appointment come through and Iā€™m just in bits about the whole thing,

I really appreciate you taking the time to reply to me, this all feels quite unbearable for me at the moment x

blondie120 profile image
blondie120ā€¢ in reply toBonniebear21

Hi,

RA rheumatoid arthritis, it can affect the eyes. Ive got Myasthenia gravis fibromyalgia , chronic fatigue syndrome an in remission from Endometriosis So yeah walking disaster to be honest. So when my narrow angles happened it was the straw that broke me , so i know how u feel.

But trust me when its done uā€™ll feel relief but it all takes time as your eyes have to rest between each opp an pop drops in.

Xx

Bonniebear21 profile image
Bonniebear21ā€¢ in reply toblondie120

Goodness me, you are very brave. I can appreciate where are are coming from with that, Iā€™m currently in remission from a condition called IIH, so to now have this looming over me Is devastating.

My consultant said he would do both eyes on the same app, what you not recommend that? X

blondie120 profile image
blondie120ā€¢ in reply toBonniebear21

Well my eye doc said for me 1 at a time was best everyone is different i guess but the main thing is im still able to see which is everything X

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