Awake because on second night of 5 day course of steroids and antib's. Took herbal nytol at 8 to hopefully get some sleep. Read my book for an hour and slept from half past ten to 3am. Woke up wheezing. Took my inhalers, started to cough took some covonia to try and settle that so I could get some more sleep - though have had half an hour longer than last night. Then had to go to the loo. Got back to bed -eventually found a propped up position that was almost comfortable. turned radio on to find a programme on the world service about torture in Pinochet's Chile. Turned that off as didn't think it was conducive to sleep. Then laid awake and couldn't find anything nice to think about! My GP telling me on Thursday when he prescribed more antib's and steroids that he had not heard of aspergillosis and doubted the consultant at the local hospital had so a good thing I was going to Manchester. So I feel a bit miserable and lonely here at the moment. I know things will look better in the daylight just wish I could get rid of the haemophilus influenza that is still hanging on in my lungs. I had to ask for medication for that after it was found back in April. Thought I would have been called to the GP or the consultant would prescribe but at my last meeting with him had to ask if it was still in the latest test results and should I have a prescription for it. Since then I have had copies of all the letters from the consultants I have seen since 2009 - three in all and am amazed at the discrepancies. I have filled two a 4 sheets with lists of the mistakes in the letters! Can you believe it? The worst is that the letter sent to UHSM states that I was admitted to hospital twice in my mid thirties. Nope not once in my thirties at all! When I was 16 for ingrowing toe nail. When I was 21 for asthma exacerbation. When I was 47 for fibroid embolisation and when I was 49 for loss of blood. I have also in the last 6 months been stated as aged anywhere between 33 and 64. Well I am somewhere in that age group - 55 actually but I wonder if they are talking about me or someone else. Doesn't instill confidence does it? Along with saying they have discussed things with me which they have not and I have a witness to that on two occasions and other annoying little things I was not very happy. So glad I found out. Must find a way of recording the consultations. If I had not seen these letters I would not have found out quite a few things that should also be checked out - not even sure if my last consultant was aware of these himself as he never mentioned them, but they were in the letters from the consultant I saw two weeks before seeing him. Now have to ask someone about these. Glad I am not bugging my last consultant and his overworked nurse any more though. I did feel sorry for them. They are trying to recruit more nurses and doctors to our area but it is hard and they are so overworked so getting me with a rare (ish) diagnosis propbably "frosted their cake". I also took up a lot of their time as wanted to ask lots of questions and ended up seeing them every week for about a month at their rapid access lung clinic which was not exactly the right place to be - or at least I do not think so anyway.
Ah well maybe sleep will come in a little while. Sorry for the long post everyone.
Love and hugs to you all