Just found this forum by chance. I was diagnosed with ABPA now in my 5th year. In the beginning I was very ill, in and out of hospital with constant c/infections, & pneumonia, if that wasn't bad enough, a junior Dr. took it upon himself to suggest I had lung cancer as my Xrays showed as a complete white mass in my lungs. Fortunately, a Senior Specialist thought otherwise and sent my bloods to the Royal Brompton in London. Following this diagnosis, nobody has ever explained this condition to me other than to say I am not strong enough to take anti-fungal drugs! Last summer I ended up in intensive care with a collapsed lung, a drain was inserted which released masses of yucky secretions. I was eventually discharged after 4 weeks. An Xray six weeks later showed my lungs to be totally clear. I am convinced the drain removed most of the fungus. To date I have not had a chest infection, my O2 levels are a staggering 98/99 and I am very active. I have to spend 1/2hr morning & eve doing secretion removal, which clears a lot of muck from my lungs. Finally, just wanted you fellow sufferers to know that I was put forward by the British Lung Foundation to have my condition highlighted by the Media, this appeared last week in the Daily Mail, ITV news and local radio. I was a "Star" for a week, and now many more people will be aware of this condition. I should add my home flooded by water coming up through the floor and because it was only a few inches of water, our insurance company took 5 yrs to put things right as they kept rejecting various builders quotes. Whilst all this haggling was going on, we had what looked like blobs of mayonnaise growing through the floorboards, it was quite disgusting. They eventually saved a few thousand pounds but left me with a potential life threatening condition. Hope this helps some of you and thank you for taking the time to read this, I would welcome any feedback. Jenny
My personal story regarding Aspergill... - Fungal Infection ...
Fungal Infection Trust
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