Introducing myself - Jane 51 - Foggy's "Invisibl...

Foggy's "Invisible Illness" Support

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Introducing myself - Jane 51

Janesmark profile image
6 Replies

Hi I’ve just come out of hospital after been diagnosed with neuropathy on my scalp, seen a neurologist and a follow up for nerve conduction tests, also seeing pain management as an outpatient patient which have been great, it’s still early days though and I still feel poorly and at my wits end I just want my life back, also I have it in my upper back and neck but there not as painful as my head.

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Janesmark
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6 Replies
peterm67 profile image
peterm67

Sorry to hear about that Jane. My consultant has prescribed high doses of vitamin B12 and it does help. I have it in my feet, legs and palette. Give it a try and good luck hope you are feeling better soon

Janesmark profile image
Janesmark in reply to peterm67

Thank you for replying at the minute I’m willing to give anything a try xx

Marz profile image
Marz in reply to Janesmark

Jarrow Methycobalamin 5000 mcg B12 lozenges for under the tongue - from Amazon. Leave until dissolved. B12 works with B9 in the body so taking a good B Complex will keep all the B's in balance.

I self inject weekly - you cannot overdose on B12 - only B6.

Janesmark profile image
Janesmark in reply to Marz

Thank you for the reply x

Valerie58 profile image
Valerie58

I also have neuropathy in my scalp and my legs. My consultant is uninterested in the neuropathy in the scalp. I find it gets worse if I am stressed. I went for a facial which happened to come with a head massage. This improved things tremendously.

I find my pins and needles in my legs get better if I eat low carb and do lots of gymn. I am awaiting the results of a second head and neck mri but they dont expect to find anything.

Have you tried using headspace app to practise minfulness and reduce stress levels

Janesmark profile image
Janesmark in reply to Valerie58

Thanks for the reply I’ve got the headspace app and I’m just starting to use it, also I’ve just bought Ruby Wax’s book Frazzled which is really interesting x

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