I am 100% sure this is what my problem is. Saw neurologist nearly two years ago because at that time it was tingling strange sensation in feet and calves, but nothing too painful. All he did was some blood tests and then sent me away - no follow up appointment.
At the end of last year I asked GP to refer me back as it was getting worse and eventually I received an appointment for mid-August!
Fast forward to April this year and the tingling has turned into excruciating pain in my right foot that I cannot get any relief from. It is painful to touch (even very lightly) and feels like electric shocks going off and razor blades cutting across the top of my foot and toes. Also, it wakes me up repeatedly throughout the night.
Last week OH and I were on holiday and basically all we do is walk with our dog. After two walks on the coastal path the pain increased by about 200%, so now it looks as though that is going to be off the agenda.
From everything I have read there is no cure for this and I just find it so upsetting
I am still nearly two months off seeing the neurologist and just know that he will fob me off again. I really don't want to go down the route of Gabapentin, Lyrica or Amitriptyline - my OH went through all of these and suffered some really bad side effects. As he is disabled I am the one working full time, so just cannot afford to be zonked out.
Please has anyone else experienced this type of neuropathy and how have you coped?
When it first started nearly three years ago my endocrinologist tested for diabetes, but said it wasn't that (I suffer from hypothyroidism).
Any feedback would be greatly appreciated.
Forgot to say, I took sublingual methylcobalamin vitamin b12 for a couple of years and last blood test was about 898 so I was told to stop. It didn't really help though.
Also forgot to say that my right foot very often feels freezing cold, but when I touch it it is quite normal
I have read that fish oil supplements can help improve nerve damage, so may try that. This is the article on it: