Hi - I posted here previously but I think i'm getting a better understanding of what it is i'm experiencing so I wondered if anyone can help me.
So since January this year I've been suffering with something that the Docs can't figure out. They say it might be psychiatric which i'm happy to accept if it is but I don't know why it's progressing through my body.
So started with Calf pain and stiffness in my feet. I was asking for foot rubs and hot water bottles all the time.
Then in January after lower back issue and neck and shoulder pain I got a headache that wouldn't shift. felt like a hand on my head pressing my temples which I still have. Took tablets and carried on. Then I noticed that when walking my body was struggling, my heart felt like it was struggling and I felt a bit dizzy when walking like I was going to pass out. Started waking with a jolt really early. I felt pretty out of it at work and just tired so I took off work. When I took off I had a rest and woke up gasping for air with a throbbing dripping sensation in my skull at the back and since that point everything went down hill.
My sinuses are inflamed and almost completely blocked and nothing has worked on them. My ears are blocked and I can't pop them. I have raised, sore lumps behind them that aren't viable but I can feel them. My hearing is super sensitive. My eyes are a bit snowy in vision and have felt like they are twitching behind all the time. My eyes also water a lot, morso since I lost feeling around the eye
It feels like my body is over stimulated and movement and talking, even my eyes.
I've had progressive loss of internal sensation throughout my body. So I can feel touch but internally I can't feel much of anything. The first bits to go were my neck and shoulders, then my scalp and chest, Tummy and diaphragm and arms legs, throat, ears and forehead around eyes, cheeks. My whole body is rigid and tender to the touch esp on my back and neck and ribcage. my left side is more sensitive than the right.
My shoulders grind all the time.
When I lose sensation it's usually after i've been walking around too much or talking/ shouting or i've had a hot shower. The sensation isn't the issue. Once i've lost sensation it feels like the muscle or ligaments died and have gone rigid. my body then goes into some kind of shock my brain feels scrambled and my body quivers. It used to take days to calm down and but as i've had less and less feeling it only takes a day or so. The muscles / Tendons then feel solid and get more rigid the movement which is done. As you can imagine this is putting immense strain on my body the further along it gets. Even eating gives me a sore and inflamed Jaw afterwards.
It feels like my body is tense from head to toe and I can't undo it because as i've lost feeling I don't really have a control over those parts and i'm very weak. Sitting up
Doing things like passing stool has become hard because I don't have that ability to push through my whole body anymore. The same with carrying anything heavy or pushing pulling things i'm so weak.
As I lost feeling in my vagina it's become very mucusy down there and my mouth feels very full of saliva too.
My hearing has got worse and I do worry that eventually this will progress to my eyes and ears.
I tried to have sex and when I climaxed I lost sensation down here and it felt too much for my body. It took ages to calm down.
Lastly but very importantly is my body is very intolerant to heat and cold. Cold makes my muscles/ ligaments even more rigid and heat seems to over stimulate the body and the body cannot distribute it properly. If I use a hot water bottle on my body it only heats the bit of the body it's one and that bit goes very red and veins become bulging and the rest of my body becomes very very cold. If I raise my voice my head gets super red very quickly and i get light headed. It's like the body bits aren't talking to each other anymore to diffuse head or just run properly.
I get very hot under my ribs and neck when my body gets hot.
My skin is pale and i have lots of blemishes on my chin and back.
I have flare ups when everything is a lot more intense and all the muscles head to toe feel like they're gripping and that makes everything harder to even sit up.
I'm sorry this has gone on i'm just desperate for someone to help as the docs are stumped and i'm getting worse.
Massages and physio make things worse somehow
Chiropractor flared things up
Thyroid and Full blood count clear
Lyme disease - Had a negative and an antibodies reaction too low to be deemed positive
MRI - Brain - Clear
MRI - Spine - Disk bulges C5, C6 & L1- Disc degeneration
Rheumatoid profile - Neg
Vit B - Fine Vit D - boarderline
C reactive protein - very low levels of inflammation
ACE - Enzyme - negative
ANA - Bloods clear
ENT - Appointment in Jan
Neurology - put me on some preventative migrane tablets after I had been admitted to hospital with a thunderclap headache. Referred to psych
Rheumatology referral - 17 Week wait
Psych referral - waiting for appointment
I've already tried antidepressants which immediately flared things up to the point I had to call a mental health team out.
Does anyone recognise anything that could be wrong?