Palindromic rheumatism, rheumatoid athritis.

[Esorgem]

I'm a 20 year old female, my rheumy says I have palindromic rheumatism and we are just waiting for anything to show up on an X-ray, blood test etc. I have not had an X-ray or ultrasound done while the inflammation was present, my rheumy is convincing me to do so and will hopefully get results from that. Basically just waiting in pain and feeling hopeless like pain killers are my only option and this is the life I'll be living from now, I've been in pain everyday for over a year. Just wondering if there was any of you with RA who begun with palindromic rheumatism? And how long did it take for it to progress into being seropositive and destructive?

Edit: Have explored other causes, inflammation markers are evident but rheumatoid factor is negative. I'm going out of my mind thinking palindromic rheumatism is just not an acceptable diagnosis but I am not a specialist. I get swelling in my MCP, PIP joints as well as the wrist, ankle and arch of my feet. I have raynaurds phenomenon every morning. Familial autoimmunity is in my family and I have hidradenititis suppurativa which is thought to be autoimmune. I am the definition of flu, I am always catching things that my older sister and friends can avoid (the bad genes skipped my sister). I even caught the swine flu when no one around me had it, my immune systems failure is stronger then antibiotics and I usually get the bad end of infections. Throats infecion or tonsillitis turns into pneumonia, urine infection will cause a kidney infection, conjunctivitis isn't just funky itchy eyes, its reoccurring and viscous. I have been tested for all other autoimmune diseases. My GP is convinced I have seronegative RA, my rheumy is convinced I have PR. What is the difference?

Not sure how much more I can take, and bless you all x

[Mmenergy]

Hello. Neuropathy pain is my biggest problem. I have cerebellar ataxia, neuropathy, and vestibular areflexia syndrome- - CANVAS.

I was mistakenly diagnosed with RA until I went to Columbia in NYC. But also have PR. hence the inflammation.

Life is a day to day challenge. I take lyrica, cymbalta, zolpidem, tramadol and marajuana. I am 65 so age also brings me down.

When I saw that you have PR, I was compelled to respond. I certainly didn't mean to overwhelm you. Getting accurate diagnoses is key.

[smiles4miles]

Hi, I was wondering if you ever got a clear diagnosis? I believe my seronegative RA began as PR. In the beginning and still some now, my inflammation did not happen symmetrically. It would happen one joint at a time. Pain was so awful, no pain meds touched it. Only thing that calmed it down was steroids. I was finally diagnosed with seronegative RA when my RA doctor did a Lupus test that tested my Anti-CCP levels which were super high. Otherwise my RA factor and other tests were coming back negative. I started with Plaquenil, but got some joint damage on it so my doc went to Methotrexate which caused hair loss and stomach upset. Off that now and taking Sulfasalazine and Plaquenil. Hoping that stops the damage, but if not I'm going to try Embrel.The pain experienced with PR is awful. I hope you've gotten some answers and some relief.