Hello all. Firstly, I want anyone who reads this post and is suffering from FND to know that you have my most sincere empathy and understanding.
My wife has been ill for approximately 7 years, but the FND only started in July of 2014. She has had a number of unfortunate illnesses that were finally becoming resolved and then this began. I have been her caretaker for a large portion of those 7 years as she has had times where she was not completely capable herself. She had to quit working completely about 3 years ago which has been a huge financial burden also. I love my wife dearly and will do anything to help her.
Her FND has manifested as garbled speech and involuntary mouth and tongue movements. She also has periods of profound confusion, dizziness, and balance issues. At times she becomes so confused she is nonfunctional. At other times she is highly functional and has virtually no symptoms.
I am scared to death she might have a severe bout of confusion while out and alone. I have to work to support us, and neither of us have any family. If I do not work to stay home with her, I do not get paid. We are both more or less orphaned only children. So we have no family support. We have talked about many scenarios and tried to best prepare her as possible. I can track her cell phone etcetera but that requires she has it with her. I just know though that it's possible she could find herself in a bad situation and alone and confused. No one would understand her speech and confuse her for someone crazy or drunk or on drugs and treat her badly or worse. I am very scared for her and us.
My wife is the most intelligent, kind, generous woman I've ever known. This is so unfair, so terribly horrible for her and anyone else suffering from this. I am a cancer survivor. I would gladly go through that again 10 times if it would fix this for her. I'm sorry for rambling. I guess I just need to get it out. Thanks for reading.