just been diagnosed with fnd

[Alwayspink60]

hi I have just been diagnosed with fnd, and find my gp is not helpful at all , the neurologist sent a letter stating confirming fnd and didn’t need to see me again, gp also not interested.

I finding it all very confusing. Also I have trouble with my left foot with itching and burning and the skin going hard, is this something different or can it also be a part of fnd. Thank you.

[Littlecook]

Hello ,I think you will find everyone with FND has been delet with in the same way, once you have been diagnosed with the condition noone wants to know ,as for your foot maybe you could talk to your doctor or your pharmacy who is as good as your doctor. Good luck and look after yourself.

[Alwayspink60 in reply to Littlecook]

Thank you ☺️

[210272]

This is all too familiar to me. Did the neurologist include the 'ruling in' signs used to make the dx? If not I would suggest asking for a second opinion. You can also give feedback about your experience via Jon Stone's website. I don't think your current symptoms are listed as symptoms of FND and I agree with Littlecook's suggestions.

[Alwayspink60]

hi thank you for your reply 😀 I had stroke like symptoms tingling in foot hands arms face tremors really bad electric stabbing feeling s in my hands feet dizzy spells and double vision also went blind in left eye for a few minutes. Headaches to it feels like something is crawling under my skin to sometimes I have collapsed a couple of times to. I get pain to and walk like I’m drunk it’s all very distressing 😢. I kept going to gp they said it was all down to stress , I have had all the tests done the white spots on my brain they said is down to old age I was 59 when they were done, one of the doctors just said I’m a mystery. Then neurologist said it’s fnd

My skin is very sensitive to. I also get the symptoms on the right side to but mainly on my left , to be honest this has been going on for nearly 2 years since a incident at work which was very distressful so I did put some of it down to that and medications

Thank you for your help and support as think there isn’t much out there 😀

[Shimmyaway]

If your GP is not being helpful, it may be due to his/her own ignorance ..very common. You could go to the FND Action website, where you will find an info sheet for health professionals. You can take it yourself to your GP, or the FND Action website, will send it for you ..but it may not reach your particular GP, if you have such a luxury. Otherwise, try and educate your GP, by giving him/her websites and being blunt and asking politely ' Are you familiar with this condition, because I am in need of help.' Ask for a referral either to a local/regional neuro science centre, or one of the FND specialist clinics that are listed on the FNDHope website. Most contributors here have had to fight their corner ..and it's the only way things are going to change, and we are treated on a par with other patients with chronic conditions .. so please be vociferous.. best foot forward even if Always pink needs to change to Seered!

[Alwayspink60 in reply to Shimmyaway]

Thank you ☺️