Pain everywhere - flare up?

[Talulla40]

Hi all

Have had my diagnosis just over a month - help and advice from GP etc has been non existent as my Neuro clinical report hasn't been sent to them as yet! So I'm still bobbing along, managing symptoms both new and not so new as best I can with limited information about what's happening to me or what to expect.

A couple of days ago I began to have horrendous pain all over, kind of like a bad dose of flu. It hasn't gone away as yet and I'm a bit freaked as I'm not sure what's happening but was wondering if maybe it's a flare up. My nerves having themselves a wee party? It's knocked me off my feet.

Anyone have similar experiences - could this be FND related?

Thanks

[tabey]

Hi there it part of the FND ride sadly but at least you know your noy goinh crazy i had and have it all over my body and i found gabapentin carmed it down a little with slow reasle pain control and oramorth for when it gets me to breaking point

Hooe this was helpful

Tabe

[Talulla40 in reply to tabey]

Hi tabey

Thanks for the reply! Sorry to hear you struggle with pain too. I think another visit to my GP is needed as I'm usually pretty good with pain but this is too much 😟

Glad to hear you get relief from your meds - that's reassuring!

Take care x

[T-KY]

Hi just from my own experience, don't assume all symptoms are FND. I have similar bobbing but the pain was getting worse. I saw an endocrinologist and found out my PTH was high again. This happened in 2016 and I thought the pain was from my RA but later I found out it was my PTH. Hyperparathyroid problems and I had surgery and felt 1000% better. Better to check then keep having the pain. Good luck

[Talulla40 in reply to T-KY]

Hi T-KY

You're absolutely right - I mustn't let myself think everything my body gets up to now is FND related! Makes more sense to rule other things out first.

Off to the docs for me again!

Great to hear you got such a good result from your surgery! Hope you stay feeling so much better 😊

[Dave_1]

It is early days yet. Many cases of FND have pain as one of the constituants of their condition. Each case of FND is particular to that individual but it is a good rule of thumb, if it is a new symptom that you havn't had before and it doesn't pass have it checked out.

We can all get the Flu or other conditrions alondside FND.

This is one issue that sufferers find so frustrating. When a medical practitioner hears you have a "FUNCTIONAL DISORDER" they are very prone to put everything down to that.

They need to treat us as they would any other patient in need of advice and not patronise us as stupid or hypochondriac.

If the pain continues go back to your medical doctor.

Take Care

[Talulla40 in reply to Dave_1]

Hi Dave_1

You're right about dismissive doctors! My GP was less than helpful when I spoke to her - not remotely interested in offering anything for pain or any advice at all really. No tests to rule other things out. Her response was - sign up to an online forum for support for FND. I think I'll try a different GP at the practice! I'm a mental health practitioner - I would never be so dismissive! I have always really felt for people who are ill and not taken seriously, and now here I am, one of them.

And yes, very early days for me - steep learning curve and a bit of a battle for help and advice but grateful for folks like yourself and this space to chat and ask questions.

Best wishes