Medication for non epileptic seizures??

[cgarff]

If you are experiencing non epileptic seizures, could you please let me know what kind of medication are helping you?? I have tried to many things, but am not finding anything that works. I would like to suggest them to my neurologist.. Need help! Any suggestions would be greatly appreciated.

[Switch1975__]

they wont put me on any meds for my non epiletic seizure , I wish that they would have some years ago as it would have helped me tons .

[cgarff in reply to Switch1975__]

That is not cool. I'm sorry your doc won't do that. There has got to be something that can help. Even a little. Good luck,

[Switch1975__ in reply to cgarff]

they have put my seizure down to dissociative disorder and have never had any meds for it and i manage it through relaxation , mediation . until a few years ago i didnt even know what they were , i know do and have just joined a support group that deals with mental illness, but the seizure are due to the stress level affecting my sugar levels in my brain so i ensure that if i feel that my sugar levels are falling to make me have one that i quickly get something to boost it or if im at home take myself to bed so i can go through the siezure in saftey .

[cgarff in reply to Switch1975__]

I unfortunately have a knack for falling out of bed during the seizures.. But thank you for your reply

[Switch1975__ in reply to cgarff]

have you had your sugar level checked as mine is triggered with stress and low sugar level getting to my brain , put in your search engine NEADS and their might be more information there but your welcome say in touch if you need talk message me any time .

[cgarff in reply to Switch1975__]

I am not sure if they have checked that yet. Thank you for the suggestions. So much fun isn't it???

[Switch1975__ in reply to cgarff]

not any fun at all i had my first seizure when i was young my mam put it down to heat stroke , but before i had my son i had a mri scan and total it wasnt epilsy but that my brain wasnt getting enough oxygen , but not till a few years ago did i get told it was due to my dissociative disorder. but my seizure had died out till my relationship break down with my ex then again when trouble with my neighbours started as it brought forward all the feeling of what happened with my ex.

[kjkla85]

I also don't have any medication for seizures specifically. Just some pain meds unfortunately. I've just had a blood test to see if one of my triggers is linked to a nut allergy. Best wishes

[positiveandcalm]

I dont know much about it but i googles a dr richard kaanan. Psyciatrist in melboure who especialises in convergence disorder aka dissociative disorder. He has a short video of 3 patients whose symptoms have been much imprroved by his multi model approach. Look it up. I hope you find it.....

Feel for you!

Its horific not to have help.....or ppl who understand....

[cgarff in reply to positiveandcalm]

Thank you, I will check him out. I've got to figure this out, can't take many more. Had 36 of them saturday, 30 of which were back to back almost. Yesterday 16, today 19 so far. So exhausting.

[VivienneWaterworth]

There are no specific medications for non epileptic seizures because there is no one medical cause for them. There are some meds that work for some people but not others, me included. I have found meds that reduce my stress and calm my body & mind can help, but they aren't for everyone.

What does help a lot of people is supplements of Vitamin B12 and magnesium in high doses (my doctor's advice is to keep increasing the dose until I get diarrhoea then reduce it slightly). These are both 'food' for your muscles and nerves, with many people reporting that these supplements have made a significant difference to their symptoms...even when blood tests show that Vitamin B12 levels are at or just below average, and still very much within the normal range.

I can have symptoms that indicate I am way too low with my B12, even when I have normal blood tests.

I now take between 3 or 4, and up to 8 huge magnesium tablets daily, depending on whether i'm having seizures, spasms or cramps, as any of those significantly increase my requirement for magnesium. This has made a HUGE difference for me. I can now walk off footpath onto a road without having to stop and be very careful, I can walk out our front door and step down a largish step to the pavement outside...all without thinking. I remember not that long ago having to stop and be very careful with these obstacles.

There are other things that help, such as valium (which is highly addictive, so they don't like giving it to you). I was given Epilim (epilepssy medication) in lower doses for significant shoulder pain, and it worked well for the pain but horrible for my memory and cognitive functions.

Some people with non epileptic seizures also have epileptic seizures. If others notice that you have, say, two different types of seizures, it might be worth checking if you have both types.

But in the end, apart from Vitamin B12 and magnesium, and perhaps folate, there are NO medications specifically designed for non epileptic seizures, and if you are prescribed anything, check your symptoms very carefully, before and after taking it, to ensure that they don't actually make you worse.

fndhope.org and neurosymptoms.org have some excellent suggestions on managing and even preventing these seizures.

[cgarff in reply to VivienneWaterworth]

Thank you, I do take b and magnesium, may be I'll have to check into taking more. ,

[Cazm]

Hi I was on Topiramate which made me feel like a zombie but I'm now on Epilm which is much better.

Every one is different though

Hope you get sorted X

[3103Cookie]

Hiya, my seizures stopped almost immediately when I started taking Pregablin (Lyrica) 600mg daily. Hopefully yours will stop soon! X

[tyjohnsonanderson]

I'm currently on Cymbalta but it's for pain...as they said...nothing really helps. I found bananas help so the magnesium thing is a good suggestion. Also meditation and reducing my triggers works.

[cgarff]

Thank you all for your suggestions and support. Just finding I'm have more and more lately, and frankly ive had enough. I need to learn to meditate, my mind is constantly going, im,sure it would help.

[Hidden]

Good morning.

Just finding my way around this site so please excuse the intrusion. Read what I think was a current post / reply from you where you described some of your FND symptoms. I have fought similar problems for last 22 years. Last year, specialist slapped the psychogenic movement disorder label on it and sent me on my way. Had seen other consulting specialists who used term FND for array of symptoms. Anyway, I use combination of meds to partially control what I know of as non epileptic seizures. It works until those days when I just get run over.

I read this post from you and was curious if you had found meds for your seizures? Always looking for better choices.

Thank you.

Dan