New diagnoses ?Spontaneous intracranial hypotension

[donnaw23]

I was diagnosed with FND in July I have been trying to come to terms with it. Then consultant asked me to go for 2nd opinion and 2nd consultant said I have spontaneous intracranial hypotension.....A leak in cerebrospinal fluid. I have to go for MRI with dye and then have a blood patch done. Anyone else hear of this.

Donna

[EnglishIslander FND Hope Volunteer]

I've heard of it, but not aware of anyone else having this issue. Although of course, if they are diagnosed then it's likely they have received the appropriate treatment and are better now Good luck with your investigations and hope a good resolve is achieved.

[donnaw23 in reply to EnglishIslander]

Thanks. If it helps it would be great.

[Anonymous-]

Will you please email me at [e-mail] about this. I would love to talk further about this. It's been a very long and difficult road! Thanks.

[donnaw23 in reply to Anonymous-]

Email sent