Not feeling well today : I don't feel... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Not feeling well today

Littlecook profile image
8 Replies

I don't feel well at all today very dizzy and left side of the face dropping I just want to sleep , I know it's not a stroke arm and legs are OK no weakness, I'm very unstable on my feet, I know if I go to hospital I will just get sent home with them saying its not a stroke you have had all the tests talk to your neurologist but that appointment isn't untill 2nd July 24 . I don't know how you all cope with your symptoms any advice please.

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Littlecook profile image
Littlecook
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8 Replies
210272 profile image
210272

I feel for you, Littlecook. Please try to get to a reputable balance centre as soon as you can. Many neurologists are clueless when it comes to motion sensation conditions.

NikkiJR profile image
NikkiJR

I hope that if you haven’t already, go to urgent care. Facial palsy in conjunction with dizziness is concerning. I hope you feel better soon!.

Littlecook profile image
Littlecook in reply to NikkiJR

Good afternoon NikkiJRThank you for your reply , I've spent many trips and hours at the A&E department and always being told I'm not having a stroke and it's not bellspalsy again told I need to see my neurologist, only one A&E doctor said I can tell you what's wrong it's NFD but only your neurologist can confirm that .

I've also been to see my doctor who's called for an ambulance said I could be having a stroke but with out arm weakness.

The care home were I work says it'. s not safe for me to work and want let me back until I get a diagnosis, I feel like I'm on the scrapheap at 62 and can't do anything I also have problems with dizziness so find most if not all jobs difficult to do , sorry I'm ranting on but I need to talk to someone besides my wife .

Thank you for listening.

Lady4 profile image
Lady4 in reply to Littlecook

Re: stroke act FAST, pretty sure I saw something going around on social media about check your can stick you tongue out too.

Lady4 profile image
Lady4

Would a weighted vest help with the dizziness, extra input to let your body know where you are in space.

Littlecook profile image
Littlecook in reply to Lady4

Hi Lady4My doctor says I've had all the tests but still can't find the cors of my issues I put it down to fnd hopefully I will find out from my neurologist next month.

I don't know how you all cope with your symptoms I'm having great difficulty I can't even do my job in the care home :(

Lady4 profile image
Lady4

I am not the sufferer my son was dx with Chronic Pain and FND. Last symptoms headaches and poor sleep. In remission now (touch wood it lasts).

The weighted blanket was a suggestion for your dizziness. Like 210272 says get a referral to a balance centre and address that first and hopefully your stress levels will drop. When we are stressed we release additional cortisol naturally, I am not sure if that would affect the face muscles.

Lady4 profile image
Lady4

Doesn't look like it does, found this article:

self.com/story/high-cortiso...

But I can relate to these strange symptoms being stressful and you need to try and relax (if you can) and try not to worry.

Have you had a series of stressful events lately, other than the run around with what we get with the medical professions.

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