Bladder cancer

[Paulwc]

Hi all got the Bladder cancer had radio and cemo 2 years ago now awaiting bladder removed as it's come back have had 2 oops in 2 months

[Hidden]

So sorry to hear things haven't gone well for you,do hope this next operation will go well and you will soon be on the road to recovery and wellness,best wishes and very kind thoughts coming your way x

[Andrew-at-FBC]

Best of luck with your operation. Plenty of people to talk to who know what this operation is like on the Fight Bladder Cancer confidential forum via the website fightbladdercancer.co.uk

[Locronan6146]

Hi Paul, had my bladder removed four years ago, I have a stoma and a pouch. I have had no problems.

Had the op at Guys hospital, all carried out by robot, recovery time was cut down to 6 days.

Take heart, my life has only changed slightly but I still lead a normal life.

Good luck when the time comes.

[waddyraymond]

Hi I'm Rayw, I was diagnosed today with bladder cancer. I was afraid until I read your post. It gave me a lot of relieve, because I have to have the same surgery. Bladder removal and the pouch. How has the hole in your body affected you?

[Paulwc in reply to waddyraymond]

Hi i am still waiting for bladder removal opprration should soon

[brimas in reply to waddyraymond]

my husband had his bladder rem and prostate in oct 2015 he as stoma and bags  he doing well now sorted with right bag for him  all the best

[hotoz57]

Has anyone discussed the option of a neo bladder with you?

It is a new bladder made from part of the lower intestine,i had one made and it does have it drawbacks but im thinking it will end up better than being on a bag for the rest of my life.

[brimas in reply to hotoz57]

hi did not know that and have you had one made was this instead of a stoma or did you have stoma then bladder made

[hotoz57]

The neo bladder is an alternative to a stoma ,i could be wrong but i think that once you have a stoma it becomes difficult to change to a neo bladder ,but the neo bladder can be changed to a stoma if it proves unsuitable. I think it would be due to the length they have to cut the ureter and other tubes.

I opted for the neo bladder right from the start,it wasnt offered as an option but my wife read about it online and suggested it to the doctors.

[Paulwc]

Hi all I've had my op Bladder now gone feeling OK it's hard for me to do the resting thing I was told recovery was slow