As with us all, pain and fatigue varies, I find the more pain the more worn out I am. A physio gave me soft grip crutches, which are great unless I am having a flare up as my hands are agony, they are great unless I am exhausted and then they become quite dangerous as I will struggle to co-ordinate them. I am going through a long spell of complete exhaustion, pain is awful, and my co-ordination is horrific. I work 30 hours a week and commute for approx 15 hours by car adding to the fatigue. My job is mainly seated at a desk but as with any job, i am required to leave my desk to carry out other duties. It can take hours to find a spot that is comfortable and when I do, I don't want to move. I have a chair with additional support, a footrest and wrist rests and am up to speed on desk safety and equipment. Can anyone suggest any aids or equipment that I may not have considered? I desperately want to maintain employment.
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