I have had fybro for over 20 years also have osteoarthritis in my hands, knees and hips and mental health problems not related to the fybro although as usual the dr's always link it. Two of my sons have fybro one is 23 the other 24 which started with knee problems which is the same way i began at the age of 14 but was told it was growing pains!! recently though my younger sons lower leg is three times the size to what it is usually solid with fluid he had been told he needed surgery on the knee which now can't be done until the swelling has gone. He sees a rheumatologist privately who recognises fybro and is brilliant and very understanding but he sees this guy in Bournemouth but now lives in Leicester his gp up there said he had a DVT for which he was given warfarin injections but the swelling is still there and the gp doesn't have a clue now to what it is he has tried antibiotics as he thought there may be an infection but nothing changed. He wen to the pain clinic this week and saw a chinese Dr there whose only answer was that it was in his head and to do exercise (which he has tried and it has made things worse) this pain DR was absolutely useless he has mentioned having a lignocaine drip but said he could only have it once and he didn't think it would work he asked him if he was working and when he said yes he was he was surprised as if to say he was a malingerer. His gp has told him to use his crutches and advised him to get a wheelchair which he did now this dr says the opposite. He saw the rheumatologist the next day in Bournemouth and he gave him a steroid injection into the knee although because of the fluid it was difficult. He told him under no circumstances to exercise and to keep the crutches but not to put weight on the leg but to exercise the foot to keep the circulation going. I know my son cries in the night with the pain as his girlfriend has told me so he is on a high dose of pain relief the same as me but how are you supposed to deal with these things when you have dr's who believe there is no such thing as fybro as the pain clinic dr said fybro is something they tell you you have if they have no other explanation for it. The rheumatologist was furious when he was told this. How can someone in a pain clinic treat you for something that he doesn't think exists anyway!!!!!!
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