I'm new to this site and found it very helpful so thanks. Q. Rhumatology

I was diagnosed with a few things one being FM - diagnosed in 2010. I've had the symptoms for many years though. I was discharged from the rhumatologist the same time he made the diagnosis, is this normal ? My symptoms have become worse recently, are you all under the care of a Rhumatologist or not ? thanks in advance D x

6 Replies

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  • Hello and welcome to our lovely forum Daisy, you are most welcome here!

    Take a look around our Questions, Blogs and Tags, there is a wealth of information there, advice, support, personal experiences and friendship too! Please read our FibroAction Guidelines, you will find these under Blogs at the top, please select FibroAction Blogs and then scroll down. We ask all our new members to read these, many thanks.

    If you have any worries or concerns, please do not hesitate to ask us, we are always only too happy to help. We all understand, we are all in the same boat here.

    I hope you enjoy your time at FibroAction! :)

  • I was diagnosed by my Rheumatologist and then given suitable meds, then referred back to my GP. This was over three years ago now. If ever my condition changes or my symptoms get worse, then I see my GP who either adjusts or changes my meds. There was a proviso that if ever I was worried or concerned about anything that I could get back in touch with my Rheumatologist and then have an appointment for a consultation at the hospital. It has worked well like this.

    I would imagine you have the same kind of arrangement, but it would be worthwhile checking to reassure you. :) Hope this helps. :)

  • I also only see my rheumy when I need to I have to ask gp to send m back. This is all well and good but with the ESA and pip both wanting detail of visits and letters, I think a lot of people will be asking to go back to many specialists. X

  • Thanks very much for the replies, I've started reading through a lot of the blogs and questions, thanks they are very helpful. I know I can ask my GP at any time for a re referral but the waiting time at the moment for Rhumatology is about 9 months in our area, so not helpful. It was in fact my psychiatrist who prescribed my meds which happen to help with the fibro symptoms. Cheers x

  • This is quite normal. Rheumatologists do most diagnoses of Fibro and they are usually experienced in diagnosing it because they have always got the referrals for suspected Fibro. However, Fibro is not really a rheumatological condition (more neurological) and requires different treatments to conditions the rheumy will be accustomed to treating, so many rheumies can diagnose Fibro but do not have the skills and experience needed to treat it.

  • Thanks... that explained why the rheumatologist referred me years ago to the Neurologist who just diagnosed severe migraines. I was discharged them. Had another referral to rheum which was when he diagnosed the fibro. I have also been discharged from his clinic as well. That was in 2010.

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