I know i do not post often, I was in flare but I am starting to believe that my current level of immobility, pain and fatigue is the new normal so it is time to try and resuscitate my life and get on with it.
i do however read the digests that are emailed to my phone and i am noticing a pattern in the questions and blogs. it seems many of us Fibromites are settling for inadequate care from our GPs. I do not class myself in this as i ma lucky my GP is AWESOME. However I would like to recommend a few things to people.
1. If you do not feel like your GP is listening, cares, or knowledgeable about your conditions FIND ANOTHER ONE. Ask around locally and if you cannot find a recommendation for a good FM gp find one whose patients are generally happy with their treatment chances are if that GP doesn't know they will learn
you relationship with you GP is vital.. the single most important medical relationship you will have.
2. Know your rights, the best way to learn is the NHS Expert Patient Programme, it teaches you what you are entitled to within the NHS . ~It is not about becoming an expert in your conditions but about becoming expert in getting good treatment.
you can change GP
you can request referrals to specialists
you can request a specific specialist.
3. Learn as much as you can about your condition.... research and read read read.
4. be gentle with yourself