I have fibro for over 10 yrs now mow ... - Fibromyalgia Acti...

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I have fibro for over 10 yrs now mow my son 26 and my daughter 24 have both been diagnosed with it any one else find this in their family

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trixie10
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Hi, Im sorry to hear about your son and daughter. My GP told me that my siblings were more likely to get fibromyalgia as I have it. As there isn't much info on fibromyalgia, we can only guess I suppose, its all new to me x

trixie10 profile image
trixie10 in reply to

Hi yes my GP told us that because i have it my children are 4 times more likely to have it as well. A really depressing thought.Upsets me so much. xx

boro profile image
boro

Hi, I have had Fibro for 11 yrs, by daughter was diagnosed with it 4 yrs ago and now my eldest son, following an accident at work, has also been diagnosed. I have been told that it can run in families, I only hope that my other 2 children don't get it. I wish you well and your children x

trixie10 profile image
trixie10 in reply to boro

I can relate to this i hope my youngest doesn't have it aswell. My Daughter got it after a really bad ear infection and my son after a bad lung infection. I now think my father may have had it as he was always in very severe pain he passed away when i was young so i can't ask hime any questions. I do came from a large family and am the only one to have fibro. Just breaks my heart that my kids have it. xx

OMG... This is what I have been worried about for my children , as I do know that it can be hereditary (?spelling)... My heart goes out to you all. When is someone in the medical and holistic business going to get their heads together and really look at this. I understand that we can be pre-disposed to this condition and so if that much is known then there must be a link somewhere..In all of my information/knowledge gleaning over the years it can still leave me confused somewhat, however I do feel that it is definately due to some missing link or a short circuit to do with the central nervous system... I am not medical enough to have great understanding, sometimes I wish I was... The only thing I would say if recently diagnosed then get rest upon rest, eat well.. flavnoids ( green tea, white tea, leafy vegetables)... do not and I mean DO NOT PUSH through any exercise.. listen to your body as it speaks to you, it will tell you and yes I know mostly this is through pain... And uptake on VIt D, Vit C, B12, Omega... and if you can get in some sunshine... oH How much would I need to win the lottery to take the whole of fibros here on holiday... ;-) cant do the sums... mmm a lot.. yes that will do a LOT...

Sending you warmest wishes and gentle hugs... x

trixie10 profile image
trixie10 in reply to

Some good advice thanks the lottery would be nice we could all head off to the sun.. xxx

Ozzygirl64 profile image
Ozzygirl64

I have had it for over 20 years and I dread it in case my children get it too. But as nothing xxxxx

in reply to Ozzygirl64

God girl how have you coped.. with everything else.. Hugs xxx

Ozzygirl64 profile image
Ozzygirl64 in reply to

I have no idea lol. But my biggest fear is if my daughter ever gets FM, it will trigger her NEAD and I just do not need that on top of everything else xxxxx

Ljames72 profile image
Ljames72

My dad was diagnosed back in 2004 with fibro and in 2008 I was diagnosed with it. I really hope my children dont get it wouldnt want to wish this severe pain and discomfort on any one x

bluesue profile image
bluesue

my middle child has been diagnosed and i question my 12 year old .... makes me soooooooooooooooo sad

ladysian profile image
ladysian

i have suffered with fibro since i was 2 years old (i'm 34 now) and my sister has her whole life too (however her's never got too bad and she barely notices it - where it has always been agony for me and has slowly gotten worse), our mother had it her whole life and our grandmother also has it, she is now 97 and has suffered with it her whole life too.

over the years i've been told time and again that it doesn't run in families, well i call bullshit on that.

i have come across many people who have had it run in families where it was passed off as 'growing pains', 'all in (patient)'s head', 'making it up looking for attention' (all of which were excuses given by my childhood gp to my mother and then me until i changed dr's, even though i had been complaining of this agonising pain my whole life and my mother would take me to the gp every 6 months to try and get me help, but the gp never examined me or did any type of tests, he meerly fobbed her off, because i got no help when i was younger i have now deteriorted til i need constant morphine just to make the pain bareable and need a wheelchair because i'm in so much pain i can't walk), or sometimes early-onset rhumatism or arthritis,

the important thing is to get to a rhumatologist as a gp cannot diagnose this, if your not happy with the answers you get from your gp insist on a referral and if they refuse you change gp's, if you do have it then get your children checked and their kids (if they have any) early care might make all the difference in their futures

trixie10 profile image
trixie10 in reply to ladysian

it is only when i read your reply it has dawned on me. I was always told the same thing as a child i.e. growing pains. Both my kids now have referrals to rhumatologists. My daughter's is tomorrow and my son should get a call any day now with a date. My GP is excellent and has done an extensive study in to fibro so he is really understanding and at least my kids have not suffered as long as i have before getting the help they need. Thanks for all the replys guys it is a comfort to know we are not alone. Gentle hugs xxx

goldwing profile image
goldwing

I have been told it runs in families, I have had it for 16 years and it has got worse the last 4 yrs or so, my sister has it, my mother had it, and i think my 30 yr old son has it but doctors just don't seem to listen to him when he tells them about his aches and pains. My 24 yr old niece was told she had child arthritis from about 10 but a lot of her symptoms are like fibro.

I feel for their futures when we are all having a bad time proving our illness, maybe, because of us it will be easier for them and future fibro sufferers, I certainly hope so. x