Feeling hopeless

[panda87]

No diagnosis yet, but Doctors keep saying fibro, rheum/osteo arthritis and ME. I've also got a vitamin deficiency and feel like everyones just passing the buck on to a different department. Any advice?

[hamble99b]

Hi panda87, sorry you're feeling like that, what consultants are you under e.g. rheumatologist?

many cover more than a few of your "possibles". Are you taking any vitamin supplements? maybe they might help short term. Hope they sort you out soon.

regards, sandra.

[Hidden]

Hi there. My doctor took months to work out what I had as there are no real outwardly signs that anything in wrong and most blood tests come back clear. Fibro suffers often do well taking vit D. We make it naturally in sunlight but there is little hope of that this year. Might be worth a try?

Hugs to all xxx

[panda87]

Thanks for your help guys. I am taking supplements Sandra, doc told me my vit d blood count was 10 and should be over 50, so gotta keep having bloods to check if it goes up.

I've been to four separate consultants, numerous mri's and bone scans and still nothing. Gotta go back to rhuematologist in Sept but will probably be told to wait and see what happens about the vitamin d levels. Just so frustrated and pain just getting worse.

Big hugs x x

[SimonMiddlemiss in reply to panda87]

Vitamin D deficiency can lead to a lot of Fibro like symptoms. Keep with the supplements and the blood tests and keep your fingers crossed.

Doctors will often try and get one condition under control at a time so they can more certainly say "this is what you have, and this is what treats it". If after your Vitamin D deficiency is under control you are still symptomatic then you'll be able to press harder for another diagnosis.

It's going to be a hard few weeks or months for you, but we'll be here if you need us.

Sorry it's not a better answer for you

Cheers

Simon

[julieevh]

Panda

That is an awful lot to take in all in one go isn't it? Your head must be spinning!

I have CFS/ME as well as Fibro. Like you I've been to see several consultants and specialists at different hospitals and I know the person with the clearest overview of it is me .... I wish I knew of a good GP in the area but they seem much of a muchness locally

I wish I had a magic solution to give you - but I haven't other than get plenty of rest and use the old pain killers as and when you need them. Give yourself plenty of time to get your head round all these conditions and be really kind to yourself. Also show family and friends the spoon theory - it will help them to better understand what you are dealing with.

butyoudontlooksick.com/arti...

Remember Panda .... you might have Fibro* but it doesn't have you

* substitute other illnesses as needed lol

Take care

Julie xx

[panda87]

Thanks for all your support and suggestions - will definitely try the spoon theory with my partner, he is trying to be supportive but just doesn't understand that I'm still in pain when I'm not crying or can barely move.

Sometimes I just feel so alone, it's good to know there are other people who understand.

You guys are my heroes x x x