My day, my life, my fibromyalgia.

[gwenmoon]

Nearly everyday starts the same way. Unable to move. The pain is unbearable after only few hours sleep, which took me most of the night to finally reach. Endless hours of listing to the local church clock chime quarter past, half past , quarter too and on the hour, dong dong dong. Waking to this can I move, shall I move, will it hurt, won't it hurt routine. Boring i wish it was just as simple. Pain drags you down the more it hurts the lower you become.

Well it's not just the pain but all the other things that come with it, follow it around , hangout with it. The endless trips to the toilet, the I am going to ruin your day now headache oh and the just for the hell of it look I am your legs but now I am not going to work for the next hour or so just to annoy you so.

That's nothing , now where did I put the cornflakes, whys the milk in the cupboard. Oh hello who are you. They say is fibre fog, but I am not convinced i think aliens have stolen my brain ( but that just between me and you).

Why is this damn thing got a hold on me, can it not go and bug someone else. Unhappy just so Unhappy. Now my hands don't work and my jaw hurts, what next chronic fatigue COME ON BRING IT ON got use to it now. Normal people you know nothing.

[littlejan]

I thought I would leave a poem on hhere that I wrote about how I feel, but was done a few years ago when feeling more down than now, so you will know I know exactly how you feel.

FROM THE HEART

I am fed so fed up with all this hurt

I lay here tearful wondering

Why life won't give me a break.

Do I actually deserve all this?

One thing after another

it never goes away.

All I want is to be free of

this pain and tiredness.

Everyone has to suffer me

But why should they

I WISH PEOPLE WOULD UNDERSTAND THE PAIN IM IN.

I want to be happy and full of life

But I can't see I ever will.

Things will never change

At least in bed I can sleep.

And not feel the pain.

Until another day begins

and starts all over again.

What joy

What a life......

[stormwytch in reply to littlejan]

Think we should have a fibro poetry book to raise funds and awareness x

[mel-maelo]

Succinctly put Gwen.

Take care

Mel xxx

[theshadow]

Hi mel-maelo

I so agree with all you say, life is hard sometimes. The lack of sleep which makes one feel like a zombie. "normal" people just don't understand. Try waking them up every two hours & see how they fare!

I sit here typing & don't feel too bad. Then try to stand up & the aching, numbing comes back to my legs, my stiff back protests because I want to straighten it. Then the "invisable mallet" hits the rest of my body!

So true, nobody understands us like we do!

Take care, gentle hugs xx

[rowantree]

I think everyone should reAd these posts! For the best insight into fibro.

I was originally diagnosed by a rhuemy, but now I've been re diagnosed with EDS-H, which does make more sense to me, as I don't have the fibro fog or the random aches and pains. Mine are in very specific parts of my body, and I now know why. BUT- I thought I'd stay on this group, partly to understand more about how fibro affects people, partly to gain support and ways of managing the chronic pain and fatigue I have, partly to see if anyone else might be mis-diagnosed. It's apparently very common to be misdiagnosed with fibro when it's actually EDS-H (hypermobility syndrome). So anyway hope you don't mind this interloper?

[stormwytch]

So very well written, explains fibro and all it's frustrating glory. I've written a song when brain comes back from vacation I'll post it

Take care, Storm x

[shirl123]

Gwen you have described me to a tee. I lay awake with the pain and restless legs and then find my legs don't work when I get up. I am so scared sometimes. I use to be a very active person and now I am virtually housebound. It gets you down

[Turquoisesummer]

❤❤❤ sending love, fibro can be unbearable🥺 wishing you better days🙏💖 edit: sorry i didnt realise this is an old post, but would say the same anyway💖