Help one docotor say i have the other says i have not got fibro

[Corpew]

I have been told i have fibro by one doc the other says it all in the mind who do i belive

[rosehip]

OMG , I CANT BELIEVE A DOC TO;LD YOU IT WAS ALL IN YOUR MIND, HOW DISCUSTING IS THAT .

THE DOC WHO DIGNOSED YOU WITH FIBRO STICK TO THAT ONE DOC AND GET SUPPORT AND GET MEDS SORTED X

[Hidden]

Hello there Corpew, good to see you here!

You say you have seen two doctors - presumably one is your GP, were you referred to another?! If you could possibly clarify in exactly what medical capacity the other doctor was, perhaps it will be a little clearer. It seems odd to me to see two doctors. Perhaps the other was a specialist. It's hard to comment without knowing this. No wonder you are confused. Please let us know and we will be able to comment further and hopefully point you in the right direction to clarifying this for you and getting a firm diagnosis.

[Corpew]

They were both GPs in our practice I saw a rumatolagist ( sorry can't spell) 10 years ago he said i had frbro one GP belives him the other a woman said there is no such thing. I have been in such a turmoil. she got me douting myself now.

[Hidden]

Hi again Corpew! Oh you poor thing! I personally think you should ask your usual GP for a referral to a Rheumatologist with a view to getting a firm diagnosis from him/her. Ten years is a long time and perhaps an updated consultation is what you need. It can be very frustrating at times can't it. I just feel that you would feel better if you knew once and for all. I hope you manage to arrange this. I wonder what the female Doctor based her opinion on, did she actually examine you, take blood tests etc?!

[Hidden]

well i think you should take the diagnosis that you have got fibro if you have been on here seen the different symptons and also go back to that gp and ask him again . have you been diagnosed by a rheumatologist? thats what normally happens your gp refers you and then the rhematologisy will 100% confirm it and put it writing and normally discharges you

good luck love diddle x th

[jazher]

Hi,

I think you should never see that woman doc again.

You dont need doctors like that, especially when you have it in bkack and white.

I keep to the same gp that diagnosed me with fibro, as she actually does believe in it. She isnt the best gp but at least she tries her best.

hugs, kel xxx

[Hidden]

It's so important to be supported in a diagnosis and GPs personal feelings seem to be entangled with consultants diagnosis which is horrible for the patient and my own experience has been confusing and stressful as it is yet another complication to set in place a definate diagnosis. My diagnosis was from a Rheumatologist and I have a copy of this letter - however, my gp feels more CFS/ME. I feel it's both, and need support with both. At least I have the letter also a diagnosis of moderate ME/CFS. Though my gp is the one who will be writing letters for my benefits appeal - it gets so messy doesn't it and needs to be firmly in place (somehow) - I would not see the gp again who is not accepting your diagnosis and perhaps have a word with the one who does -

[kraftyk8]

Hi Corpew,

To add to Libby's replies, I think you should speak to the Practice Manager at your surgery and ask that all the GP's approach FMS/CFS/ME in the same way and explain the difference between the two GP's you have seen.

The negative one is way out of date on her thinking and I dread to think what would happen if anyone with symptoms had her as their first contact at the surgery. It sounds like she needs some training to update her thinking.

I have to admit that my thoughts on it were much the same as hers, as the knowledge I had, was gained during my nursing training in the early 70's. I never came across them in my 30 year career nursing, so it never changed.

It wasn't until I had a massive row with my Rheumatologist in 2008, when he told me I had FMS and he told me to go away and do some research because my thinking was extremely out of date, that I discovered how much the view of these conditions had changed and how much progress had been made.

I had to apologize to him but I still have trouble with the labels as they are really just the labels for groups of symptoms, without any clear cause for them.

Having read all kinds of research, I'm a firm believer that they emanate from the disruption of function of neuro-transmitters/receptors, but I can't wait for them to discover what the cause of the disruption is.

happy hugs, kate

[kraftyk8]

Hi Julie,

I'm sorry, but I don't understand the point of any of what you have said, or how it relates to Corpew's question.

Perhaps you could put it in a blog with a clearer explanation?

confused hugs, kate

[kraftyk8]

oh dear.......

[Hidden]

This is very insightful advice. Thank you.

[tulips123]

Because there are so many different symptoms associated with F.M. some doctors dont quite accept it does exist. I think if a rhuematologist has diagnosed u, and I believe the main criteria used are certain painful pressure points and chronic fatigue, then you should accept that you probably have. Wish you all the best!

[LindseyMid]

True somatoform disorder (where psychological distress is manifested as physical symptoms) is certainly something that could be ruled out when diagnosing Fibro, but this is quite rare - unlike Fibro!

Fibro is also not "all in the mind" so if you have a Fibro diagnosis, try not to doubt yourself.