knickers for comfort because fibromyalgia makes us vulnerable and we have to use the bathroom frequently

[Suffering24]

healthunlocked.com/fibromya...

I wrote a reply but then saw it was posted 6 months ago so I’ve copied it here for information for everyone in case you haven’t heard or seen the disposable knickers

Fibromyalgia just affects everything doesn’t it ?

[Suffering24]

also if you go on Amazon you can buy disabled toilet keys and a card that says you need to use the toilet urgently because you have fibromyalgia. It’s been useful to me . And don’t feel embarrassed to walk in front of the queue for the ladies toilet to get to the disabled one . I often have my stick with me but having a card on a lanyard helps me not to have to explain remember “ hidden disabilities “ not everything is shown or seen by others .

I worked at the airport and helped many suffered of hidden disabilities, now I am one myself .

I use the wheelchair service when travelling I get to be taken straight to the gate and then onto the plane via the airlift . For me to go up the planes steps would be unbearable and cause me so much unessary pain for the duration of my journey . It’s bad enough sitting for more than an hour .. so take every piece of help and support you can don’t be embarrassed , people you see that day are unlikely to ever see you again so who cares …. Just take care of you …

[skit in reply to Suffering24]

I'm mostly with you Suffering24. I have never got a card but obtained a Radar key years ago. My moan is unlockable disabled toilets often have baby change in them. It is very difficult to know how long some Mums need to change a nappy!

[Hidden in reply to Suffering24]

"I often have my stick with me but having a card on a lanyard helps me not to have to explain remember “ hidden disabilities “ "

I've never quite understood this "Hidden disability" thing, with Fibromyalgia.

If I hobble along, leaning on my stick, with my physically fit and healthy 23 year old son it is visibly apparent to the interested onlooker which one of us has earned the disabled parking spot we've just parked in.

They would, however, be wrong as my son is autistic, the Motability car is his and I am his carer and driver.

During my infrequent periods of wellness, however, I am sure the same interested onlooker would be tutting at the two able bodied men taking up a disabled spot.