immune system exhaustion

[Lovecavatese]

hi everyone, my fibromyalgia disease progression means I have a hideous migraine most days now, constant exhaustion and indifference to myself.

on the bright side, I am finding clinical studies which are evidence of our illness. Thank Goodness. I’d thought I’d share a recent one. Subscribe with your email for updates.

healthrising.org/blog/2025/...

ADMIN: Link user put in other post as a correction: healthrising.org/blog/2025/...

[desquinn Partner Volunteer FMAUK Trustee]

This corrected link does not mention fibro so does not seem related to "our illness"

[Lovecavatese in reply to desquinn]

Hi Des, this needs to be clarified by the Americans as it appears all studies are linking CFS as fibromyalgia as ME is a separate term. I have read the relative studies where Nancy Klimas mentions CNS inflammation, mitochondrial involvement and returning to viral load. 🤷‍♀️ It’s as if dealing with each separately gives greater focus during the studies but are relative. Do you think this could be investigated please? Thanks

[desquinn Partner Volunteer FMAUK Trustee in reply to Lovecavatese]

There is a discussion about whether CFS = ME or what the correct name should be. ME is more UK focused I believe. But this does not relate to fibromyalgia. The diagnostic criteria for both are very different as is treatment.

[Bethenny]

Very interesting read if you suffer with chronic fatigue. Thank you 👍😊